CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0818-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19491	C19491	Spinal cord injury upper extremity reach grasp basic assessment status	The status of the ability to reach and grasp as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19499	C19499	Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text	The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19247	C19247	Subject ID	Subject identification ID	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2068-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C21621	C21621	Twin sibling vital status	The vital status of twin of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14694	C14694	Berg Balance Scale (BBS) - unsupport stand scale	The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14702	C14702	Berg Balance Scale (BBS) - turn head scale	The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19491	C19491	Spinal cord injury upper extremity reach grasp basic assessment status	The status of the ability to reach and grasp as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06060	C06060	Pain location indicator	Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C05408	C05408	Hospital admission date and time	Date (and time, if applicable and known) the participant/subject was admitted to the hospital	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19499	C19499	Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text	The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C19247	C19247	Subject ID	Subject identification ID	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06008	C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19492	C19492	Spinal cord injury upper extremity shoulder function status	The status of shoulder function as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C19247	C19247	Subject ID	Subject identification ID	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07433	C07433	Patient Health Questionnaire (PHQ) - Tired little energy score	Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2068-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12625	C12625	Respiratory intervention neonatal problem type	Type of intervention for breathing problems at or soon after the participant/subject's delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14703	C14703	Berg Balance Scale (BBS) - turn around scale	The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19492	C19492	Spinal cord injury upper extremity shoulder function status	The status of shoulder function as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.