CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1870
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06324 SCI Classification motor exam anatomic site

Muscle (and associated spinal cord level) evaluated during the motor examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06337 SCI Classification motor exam anatomic site grade

Grade that documents the movement, range of motion, and resistance of the specific muscle on the right or left side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06422 SCI Classification pin prick single side score

Score of sensation of a pin prick for the specific side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Spinal Cord Injury Spinal Cord Injury
C06420 SCI Classification motor strength lower limb single side score

Score of motor strength for the lower limb on the specific side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06325 SCI Classification light touch anatomic site grade

Grade that documents the ability to sense light touch on the specific spinal cord level and side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06325 SCI Classification light touch anatomic site grade

Grade that documents the ability to sense light touch on the specific spinal cord level and side

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06347 SCI Classification motor strength lower limb total score

Total score of motor strength for the lower right and left limbs

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Spinal Cord Injury Spinal Cord Injury
C06421 SCI Classification light touch single side score

Score of sensation of light touch for the specific side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06326 SCI Classification sensory exam anatomic site

Spinal cord level evaluated during the sensory examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Spinal Cord Injury Spinal Cord Injury
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06326 SCI Classification sensory exam anatomic site

Spinal cord level evaluated during the sensory examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06348 SCI Classification anal sensation indicator

Indicator of whether or not the person has any anal sensation

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Core History of Injury Spinal Cord Injury Spinal Cord Injury
Displaying 26 - 50 of 1870

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.