CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1888
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19329 Spine recording-reference electrode configuration type

Type of electrode configuration of spine recording-reference

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19389 Spine ligamentous injury rupture status

Status of ligamentous injury or rupture in spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C22178 Laboratory procedure oral glucose tolerance test diagnostic classification type

This variable will assess the ability to handle an oral glucose load

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19185 Urinary tract drug use other text

The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19099 Upper extremity/hand reconstructive surgery indicator

Indicator for surgery on upper extremity/hand

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19494 Spinal cord injury upper extremity function complications status

The status of complications to upper extremity function like pain, spasms, contractures, edema, etc

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19400 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count

Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19350 Pulse count

Number of pulses

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22231 Laboratory procedure 25 hydroxy vitamin D serum value

This variable documents low or normal body stores of vitamin D

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19246 Electrical perceptual threshold average value

Average value of electrical perceptual thresholds

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C19216 Systemic neuro-degenerative disorder surgery caused description

Description of surgery caused by systemic neuro-degenerative disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19241 Sympathetic skin response mono poly-phasic type

Type of sympathetic skin response phase

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C22341 Laboratory procedure anterior pituitary function menstrual cycle time type

The type related to cycle time of the menstrual the female subject/participant

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22249 Dual X-ray absorptiometry total hip bone mineral density value

The value related to bone mineral density (BMD) found in the total hip through dual X-ray absorptiometry (DEXA)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22353 Laboratory procedure renin aldosterone function aldosterone seat stand serum value

The value related to concentration of plasma renin when participant/subject is seated or standing

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22279 Thyroid disease prior diagnosis type

Type of prior diagnosis for thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19307 Spine subluxation translation level measurement

Measure of subluxation from posterior aspect of vertebral body relative to nearest adjacent body (in mm)

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19399 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic event count

Number of events in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C22288 Thyroid disease prior thyroid nodule diagnosis type

Type of prior thyroid nodule diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19408 Brain Motor Control Assessment (BMCA) - Muscle count

Number of muscles examined as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.