CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1886
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22246 Laboratory procedure procollagen type 1 N-terminal propeptide plasma serum value

Value of procollagen type 1 N-terminal propeptide plasma serum in the laboratory procedure

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19455 Spine transverse canal diameter caudal injury measurement

Measurement of transverse cord diameter rostral to injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19223 ISNCSCI left neurological injury level anatomic site

The most caudal segment of the cord with intact sensation and antigravity (3 or more) muscle function strength on the left side, provided that there is normal (intact) sensory and motor function rostrally respectively. The NLI is the most cephalad of the sensory and motor levels

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C21661 Follow-up care other text

Describes other types of follow-up care the subject/participant has received

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C19490 Spinal cord injury toileting assessment status

The status related to toileting and spinal cord injury

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19463 Acute spinal cord injury features integer range value

Value on the integer range for acute spinal cord injury feature

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19129 Facility arrival time

Time at which patient arrived at facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19125 Patient participant interventional clinical research study trial enrollment indicator

Indicator for enrollment of patients/participants in interventional clinical research studies/trials

Supplemental Other Investigational Treatments Spinal Cord Injury Spinal Cord Injury
C20369 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale

The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C22286 Thyroid disease prior thyroid cancer diagnosis type

Type of prior thyroid cancer diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19372 Imaging exam pulse sequence inventory type

Type of exam pulse sequence inventory

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19166 Special care unit admittance indicator

Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19496 Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site

The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19132 Ventilator assistance utilization indicator

Indicator for the utilization of ventilator assistance on discharge

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19105 Upper extremity surgery right soft tissue restoration pinch performed indicator

The indicator for the surgical procedure of the restoration of right pinch and/or grasp in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19212 Degenerative spine disorder surgery date

Date of surgery caused by degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19417 Brain Motor Control Assessment (BMCA) - Protocol anatomic site

The anatomic site of the protocol being evaluated as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C18680 Food Frequency Questionnaire - (FFQ)-specific brand other text

The free-text field related to 'Food Frequency Questionnaire - (FFQ)-specific brand type' specifying other text. Specific brand of multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19113 Upper extremity surgery right osteotomy radius performed indicator

The indicator for the surgical procedure of the restoration of the right radius in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.