CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 11 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1803-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18168	C18168	Laboratory procedure total cholesterol measurement	Measurement of the total amount of cholesterol in the participant's blood	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06152	C06152	Imaging study urinary tract global result type	The type of results related to urinary tract from imaging of two kidneys	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06154	C06154	Stasis dilation upper urinary tract laterality type	The laterality type related to stasis/ dilatation in upper urinary tract. This means stasis or dilatation was found of the renal pelvis (hydronephrosis) and/or ureter (hydroureteris) on either side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury

1886 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.