CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 20 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1726-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06414	C06414	Spinal cord injury etiology type	Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude	Supplemental	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06145	C06145	Vesicouretic reflux laterality type	The laterality type related to reflux to the ureter observed at the right and/or the left side	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18123	C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06152	C06152	Imaging study urinary tract global result type	The type of results related to urinary tract from imaging of two kidneys	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06154	C06154	Stasis dilation upper urinary tract laterality type	The laterality type related to stasis/ dilatation in upper urinary tract. This means stasis or dilatation was found of the renal pelvis (hydronephrosis) and/or ureter (hydroureteris) on either side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18123	C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06152	C06152	Imaging study urinary tract global result type	The type of results related to urinary tract from imaging of two kidneys	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06145	C06145	Vesicouretic reflux laterality type	The laterality type related to reflux to the ureter observed at the right and/or the left side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18131	C18131	Clearance text	Clearance	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06154	C06154	Stasis dilation upper urinary tract laterality type	The laterality type related to stasis/ dilatation in upper urinary tract. This means stasis or dilatation was found of the renal pelvis (hydronephrosis) and/or ureter (hydroureteris) on either side	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06137	C06137	Laboratory procedure kidney total glomerular filtration capacity measurement	The total glomerular filtration capacity of the kidneys performed on the date given. [mL/min/1.73 m2]	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury

1870 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.