CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2075-C09687	C09687	Food Frequency Questionnaire - (FFQ)-potassium indicator	Potassium indicator, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2122-C08515	C08515	36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator	Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F1735-C12732	C12732	Needle electromyography motor unit action potential duration	The duration of the motor unit action potential during needle electromyography	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09812	C09812	Food Frequency Questionnaire - (FFQ)-liquor indicator	Average total amount of liquor the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C18151	C18151	Thyroid disease specify name	Specifies the name of thyroid disease diagnosed	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C21656	C21656	Orthosis other type	Other types of orthoses used by the participant/subject	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06363	C06363	Serum lipid anti lipid therapy indicator	Indicates whether a fasting lipid profile was conducted while the participant/subject was on anti-lipid therapy	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19469	C19469	Brain Motor Control Assessment (BMCA) - Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C17795	C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06112	C06112	Ventilatory assistance type	Type of assistance device utilized to augment ventilation	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18144	C18144	Bowel care time stool pass care past three months average indicator	Indicator for whether the average time spent waiting for the last stool passes before ending bowel care is not applicable or unknown	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07081	C07081	Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score	Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09860	C09860	Food Frequency Questionnaire - (FFQ)-olive oil added food indicator	Average total amount for olive oil the subject added to food or bread this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2513-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09695	C09695	Food Frequency Questionnaire - (FFQ)-soy milk consume total amount value	Average total amount of soy milk the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2122-C08523	C08523	36-item Short Form Health Survey (SF-36) - Times pep score	Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09820	C09820	Food Frequency Questionnaire - (FFQ)-dark chocolate indicator	Average total amount of dark chocolate the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1780-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09655	C09655	Food Frequency Questionnaire - (FFQ)-vitamin A duration	Duration of vitamin A intake, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1717-C18145	C18145	Procedure perform time	Time of day at which the examination was taken measured in an hour/minute format (HHMM).	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C18163	C18163	Gonadal disease specify name	Specifies the name of gonadal disease	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.