CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2070-C18883	C18883	Orthosis other text	The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F2118-C17227	C17227	Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score	Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F0364-C07443	C07443	Satisfaction with Life Scale (SWLS) - Life condition excellence score	Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)	Supplemental	Satisfaction with Life Scale	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09759	C09759	Food Frequency Questionnaire - (FFQ)-onions vegetable indicator	Average total amount of onions as a vegetable, rings, or soup the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
f1742-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09884	C09884	Food Frequency Questionnaire - (FFQ)-sugar use ten years indicator	Indicator of how the subjects use of sugar changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1727-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05451	C05451	Injury Severity Score	Score measured by injury severity score (ISS)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06451	C06451	Neuromuscular scoliosis assessment method type	Type of method(s) used to determine the presence of neuromuscular scoliosis	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06252	C06252	Compression device type	Any compression device worn by the individual that may affect cardiovascular parameters during the examination.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06009	C06009	SCI Classification motor neurological level right result	Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06022	C06022	Urinary incontinence collect appliance type use indicator	Indicator of whether or not the type of collecting appliance for urinary incontinence was in use on the date of data collection	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22824	C22824	Injury below level cold allodynia intensity scale	The scale related to intensity if allodynia for cold below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2118-C17235	C17235	Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score	Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F0371-C07083	C07083	Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score	Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09767	C09767	Food Frequency Questionnaire - (FFQ)-beef pork hot dogs indicator	Average total amount of beef or pork hot dogs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1742-C10687	C10687	Imaging diffusion first b value	Value, in square millimeters per second, of the first b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12631	C12631	Deliver condition hypotonia grade	Grade of any hypotonia (floppiness) that was present at or soon after the participant/subject's delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C14204	C14204	Emergency Medical Services (EMS) vehicle type	This refers to the Emergency Medical Services (EMS) vehicle that is used to transport the patient to the hospital. Choose one response	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09727	C09727	Food Frequency Questionnaire - (FFQ)-other fruit juice indicator	Average total amount of other fruit juices the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F0827-C18145	C18145	Procedure perform time	Time of day at which the examination was taken measured in an hour/minute format (HHMM).	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C06409	C06409	Skin thermoregulation pressure ulcer past year indicator	Indicator of the presence of a pressure ulcer during the last 12 months	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.