CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22247 Dual X-ray absorptiometry scan osteoporosis diagnosis anatomic site

This variable documents bone mineral density at skeletal sites of interest, including the distal femur, proximal tibia, total hip, femoral neck, and radius (at one-third site)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C53075 Neurogenic bowel dysfunction total score

The total score for Neurogenic Bowel Dysfunction used for assessment of bowel symptoms in individuals with SCI

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19456 Spine sagittal cord diameter injury measurement

Measurement of sagittal cord diameter injury

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19224 Outcome type

Type of outcome

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C20362 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale

The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22277 Thyroid disease assessment date

Date when information was collected for prior thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19464 Imaging cord transaction indicator

Indicator for cord transaction in magnetic resonance imaging

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19374 Test sequence order number

The position of the selected test in the testing sequence being recorded

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19252 Imaging pre-existing hardware surgery type

Type of pre-existing hardware or surgery

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19096 Surgery performed date

Date of last surgical intervention

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19177 Pre spinal cord lesion pulmonary conditions present type

Types of pulmonary conditions present before spinal cord lesion

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 Supplemental Other Investigational Treatments False Spinal Cord Injury Spinal Cord Injury
C20370 Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale

The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22287 Thyroid disease prior thyroiditis cancer diagnosis date

Date when prior thyroid cancer was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C58643 Electrophysiology facilitation type

Type of facilitation or reinforcement employed in electrophysiology testing

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19376 Imaging exam pulse sequence inventory indicator

Indicator for exam pulse sequence inventory

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19167 Special care unit type

Type of special care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19497 Spinal cord injury upper extremity hand reconstructive surgery performed indicator

The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19432 Brain Motor Control Assessment (BMCA) - Achilles clonus duration

Duration of Achilles clonus as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C19404 Brain Motor Control Assessment (BMCA) - Repeatability over three trials result

Repeatability of response occurring over three trials as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C21671 Urinary tract antibiotic antiseptic use reason

Reason antibiotics or antiseptics were used for the urinary tract

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19106 Upper extremity surgery left soft tissue restoration pinch performed indicator

The indicator for the surgical procedure of the restoration of left pinch and/or grasp in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19213 Pre-existing systemic neuro-degenerative disorder specify diagnosis name

Specifies name of pre-existing systemic neuro-degenerative disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
Displaying 151 - 175 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.