CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 126 - 150 of 2057
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20368 Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale

The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19386 Spine traumatic herniated nucleus polposus anatomic level anatomic site

The anatomic site level of traumatic herniated nuclear polposus in the spine.

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C22285 Thyroid disease prior thyroiditis diagnosis date

Date when prior thyroiditis disease was diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19416 Brain Motor Control Assessment (BMCA) - Response present indicator

Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA).

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19140 Discipline types

The types of disciplines relevant to rehabilitation services

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C51984 Child and Adolescent Scale of Participation (CASP) - Manage daily schedule scale

Scale to rate level of participation in managing daily schedule, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP).

Supplemental Child and Adolescent Scale of Participation (CASP) Spinal Cord Injury Spinal Cord Injury
C19112 Upper extremity surgery left osteotomy humerus performed indicator

The indicator for the surgical procedure of the restoration of the left humerus in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C54566 Children?s Depression Inventory-2 (CDI-2) ? Self-report item 18 score

Score for the self-report item 18 as part of the Children's Depression Inventory – 2 (CDI-2).

Supplemental Children's Depression Inventory - 2 (CDI-2) Spinal Cord Injury Spinal Cord Injury
C19785 Medical history pulmonary bilevel positive airway pressure start date

Date of start of bilevel positive airway pressure

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19430 Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator

Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19393 Spine degenerative abnormality lower limit level anatomic site

The anatomic site level of spine related to the degenerative features of abnormality.

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19497 Spinal cord injury upper extremity hand reconstructive surgery performed indicator

The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury.

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19726 Laboratory procedure fasting insulin value

Subject/Participants amount of fasting insulin in the blood.

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18608 Kidney left excretory function measurement

The percentage of excretory function for the left kidney. The combined excretory function for the two kidneys is 100 %.

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19354 Thermal quantitative sensory testing increase rate value

Rate of increase in stimulation intensity for thermal quantitative sensory testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19455 Spine transverse canal diameter caudal injury measurement

Measurement of transverse cord diameter rostral to injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) Spinal Cord Injury Spinal Cord Injury
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Exploratory Family History Spinal Cord Injury Spinal Cord Injury
C19223 ISNCSCI left neurological injury level anatomic site

The most caudal segment of the cord with intact sensation and antigravity (3 or more) muscle function strength on the left side, provided that there is normal (intact) sensory and motor function rostrally respectively. The NLI is the most cephalad of the sensory and motor levels.

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C21661 Follow-up care other text

Describes other types of follow-up care the subject/participant has received.

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19490 Spinal cord injury toileting assessment status

The status related to toileting and spinal cord injury.

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.