CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1888
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C22281 Thyroid disease prior goiter diagnosis type

The type related to prior thyroid disease of goiter diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19372 Imaging exam pulse sequence inventory type

Type of exam pulse sequence inventory

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19401 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration

Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19087 Closure date & time

Date and time the closure was performed by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19161 Participant safety compromising medical condition indicator

Indicator for serious co-morbid or concomitant medical condition that, in the opinion of the investigator, would compromise the safety of the patient/participant or compromise the participant's ability to participate in the study

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C22294 Thyroid disease prior diagnosis other date

Date when other thyroid disease was diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19415 Brain Motor Control Assessment (BMCA) - Muscle movement type

Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19258 Occupation primary status

The status indicating the participant's/subject's current primary occupational status

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C19095 Pressure ulcer surgical treatment indicator

Indicator for surgical treatment of pressure ulcer

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19202 Pre spinal cord lesion neuro-musculoskeletal history type

Type of neuro-musculoskeletal history prior to spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20374 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text

The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19344 Sensory evoked potential sensory spine component used text

Free text field for the component related to assessing somatosensory system functioning

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19224 Outcome type

Type of outcome

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19392 Spine degenerative abnormality upper limit level anatomic site

Level of upper limit in spine for abnormality from degenerative feature

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C22192 Laboratory procedure calcium plasma serum value

This variable documents abnormality in circulating total calcium level

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19189 Oral laxative tablets capsules granulates other text

The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19102 Upper extremity surgery left soft tissue reconstruction tendon elbow performed indicator

The indicator for the surgical procedure of the left tendon for elbow extension in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19497 Spinal cord injury upper extremity hand reconstructive surgery performed indicator

The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19403 Brain Motor Control Assessment (BMCA) - Test type

Type of protocol testing as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.