CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0828-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06122	C06122	Renography radioactive isotope type	Type of radioactive isotope used to perform the renography	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06060	C06060	Pain location indicator	Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C22705	C22705	Urinary incontinence collect appliance indicator	Indicator for collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06062	C06062	Pain intensity average past week scale	Scale of the participant's/subject's pain intensity in the past week. A 0 - 10 Numerical Rating Scale (ranging from 0 = "No pain" to a maximum of 10 = "Pain as bad as you can imagine") of average pain intensity for the past week	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06002	C06002	Inpatient treatment total day number	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09876	C09876	Food Frequency Questionnaire - (FFQ)-margarine use ten years indicator	Indicator of how the subjects use of margarine has changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F0823-C06217	C06217	Respiratory discomfort distended abdomen frequency	The frequency of any respiratory discomfort (shortness of breath/difficulty in taking a deep breath) considered to be entirely or partly due to a distended abdomen within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09711	C09711	Food Frequency Questionnaire - (FFQ)-margarine spreadable butter type indicator	Type of margarine or spreadable butter the subject usually uses, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09836	C09836	Food Frequency Questionnaire - (FFQ)-ready made pie indicator	Average total amount of ready-made pie the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1782-C15531	C15531	Imaging evoked potential stimulation frequency value	The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09671	C09671	Food Frequency Questionnaire - (FFQ)-vitamin E type	Vitamin E type, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1735-C12698	C12698	Electrophysiology motor nerve segment length measurement	The nerve segment length measured during the motor nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06156	C06156	Kidney stone laterality type	The laterality type related to kidney stones present. This means urinary stone(s) was/were found in the renal pelvis or renal parenchyma on either side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.