CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1795-C19398	C19398	Brain Motor Control Assessment (BMCA) - Upper limb relaxation silence indicator	Indicator for silence in assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19094	C19094	Gastrointestinal tract surgical procedure other text	The free text field related to "Gastrointestinal tract surgical procedure indicator" specifying other text. Type of procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19240	C19240	Sympathetic skin response frequency	Frequency of Sympathetic Skin Response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19201	C19201	Pre spinal cord lesion endocrine metabolic condition diagnosed other text	The free text field related to "Pre spinal cord lesion endocrine metabolic condition diagnosed type" specifying the other text. Type of pre spinal cord lesion endocrine & metabolic condition	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19079	C19079	Method Used Type	The type of method used for measuring temperature	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20379	C20379	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text	The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C19189	C19189	Oral laxative tablets capsules granulates other text	The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19406	C19406	Brain Motor Control Assessment (BMCA) - Magnitude average value	Average magnitude value over all trials as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22306	C22306	Laboratory procedure thyroid function triiodothyronine resin uptake serum value	The value related to triiodothyronine (T3) resin uptake in serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19102	C19102	Upper extremity surgery left soft tissue reconstruction tendon elbow performed indicator	The indicator for the surgical procedure of the left tendon for elbow extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19209	C19209	Pre-existing degenerative spine disorder specify anatomic site	Specifies anatomic site of pre-existing degenerative spine disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19424	C19424	Brain Motor Control Assessment (BMCA) - Fast as possible onset time	Time of onset recorded in the Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22327	C22327	Laboratory procedure gonadal function albumin serum value	The value related to concentration of albumin in the serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19110	C19110	Upper extremity surgery left soft tissue other performed indicator	The indicator for the surgical procedure of the restoration of something other on the left side in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19217	C19217	Systemic neuro-degenerative disorder surgery date	Date of surgery for systemic neuro-degenerative disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22341	C22341	Laboratory procedure anterior pituitary function menstrual cycle time type	The type related to cycle time of the menstrual the female subject/participant	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19118	C19118	Upper extremity surgery left osteotomy wrist performed indicator	The indicator for the surgical procedure of the restoration of the left wrist in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F2076-C19324	C19324	Abbreviated injury scale grade value	Value of grade on the association impairment scale	Exploratory	Electrical Perceptual Thresholds (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19203	C19203	Pre-existing congenital deformity specify diagnosis name	Specifies name of pre-existing congenital deformity of the spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22353	C22353	Laboratory procedure renin aldosterone function aldosterone seat stand serum value	The value related to concentration of plasma renin when participant/subject is seated or standing	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.