CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19108 Upper extremity surgery left soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of left tendon/muscle releases or lengthenings in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19482 Paid work hour week count

The number of hours per week in paid work

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19215 Systemic neuro-degenerative disorder surgery caused indicator

Indicator for surgery caused by systemic neuro-degenerative disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19424 Brain Motor Control Assessment (BMCA) - Fast as possible onset time

Time of onset recorded in the Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22327 Laboratory procedure gonadal function albumin serum value

The value related to concentration of albumin in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19116 Upper extremity surgery left osteotomy ulnar performed indicator

The indicator for the surgical procedure of the restoration of the left ulnar in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19490 Spinal cord injury toileting assessment status

The status related to toileting and spinal cord injury

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22341 Laboratory procedure anterior pituitary function menstrual cycle time type

The type related to cycle time of the menstrual the female subject/participant

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19324 Abbreviated injury scale grade value

Value of grade on the association impairment scale

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19124 Upper extremity surgery left other performed indicator

The indicator for other surgical procedure on the left side

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19185 Urinary tract drug use other text

The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19083 Non-surgical bed rest external immobilization indicator

The indicator related to non-surgical bed rest and external immobilization

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19459 Spine transverse cord diameter caudal measurement

Measurement of transverse cord diameter caudal

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19313 Quantitative sensory testing average threshold value

The average threshold value over all trials for the sensation and threshold types selected in Quantitative Sensory Testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19331 Imaging number of excitations count

The count as related to number of diffusion tensor imaging acquisitions or number of excitations

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22281 Thyroid disease prior goiter diagnosis type

The type related to prior thyroid disease of goiter diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19470 Spine upper level anatomic site

Anatomic site on the upper level of the spinal cord

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19338 Electrophysiology test coil location text

Text articulating the location of coil in electrophysiology test

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C58649 Quantitative sensory testing decrease stimulation rate unit of measure

The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19261 Imaging magnetic resonance imaging quality result

Image quality of magnetic resonance image

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19159 Care provision level

The level of care provided to participant by health care facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
Displaying 426 - 450 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.