CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19423 Brain Motor Control Assessment (BMCA) - Similarity index value

Value of similarity index recorded for the designated test as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22325 Laboratory procedure gonadal function sex hormone binding globulin serum value

The value related to concentration of sex hormone binding globulin in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19115 Upper extremity surgery right osteotomy ulnar performed indicator

The indicator for the surgical procedure of the restoration of the right ulnar in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22339 Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value

The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19123 Upper extremity surgery right other performed indicator

The indicator for other surgical procedure on the right side

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19355 Thermal quantitative sensory testing decrease rate value

Rate of decrease in stimulation intensity for thermal quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19082 Interventionprocedure date

Date (and time if applicable and known) intervention/procedure was performed

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22352 Laboratory procedure renin aldosterone function aldosterone supine serum value

The value related to concentration of serum aldosterone when participant/subject is supine

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19404 Brain Motor Control Assessment (BMCA) - Repeatability over three trials result

Repeatability of response occurring over three trials as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19365 Abbreviated injury scale six body region category

The six body regions assessed with the 6 point intermediate ordinal severity scale

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19091 Urinary tract surgical procedure indicator

Indicator for surgical procedure on the urinary tract

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19177 Pre spinal cord lesion pulmonary conditions present type

Types of pulmonary conditions present before spinal cord lesion

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C58644 Diaper pad plug use past three month frequency category

Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19418 Brain Motor Control Assessment (BMCA) - Comments text

The free-text field for additional comments as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C21628 Pediatric Glasgow coma scale date and time

Date (and time, if known) of Pediatric Glasgow Coma Scale assessment

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

 Supplemental Electrical Perceptual Thresholds False Spinal Cord Injury Spinal Cord Injury
C19185 Urinary tract drug use other text

The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19099 Upper extremity/hand reconstructive surgery indicator

Indicator for surgery on upper extremity/hand

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19206 Congenital deformity surgery caused description

Description of surgery caused by pre-existing congenital deformities of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C18608 Kidney left excretory function measurement

The percentage of excretory function for the left kidney. The combined excretory function for the two kidneys is 100 %

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19438 Brain Motor Control Assessment (BMCA) - Average maximum pressure value

The average of all maximum pressure values recorded in the designated protocol as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
Displaying 401 - 425 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.