CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19085 Surgical procedure approach type

The type of approach taken in surgical procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22178 Laboratory procedure oral glucose tolerance test diagnostic classification type

This variable will assess the ability to handle an oral glucose load

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19494 Spinal cord injury upper extremity function complications status

The status of complications to upper extremity function like pain, spasms, contractures, edema, etc

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19400 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count

Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C19180 Steroid administration type

Type of steroids (methylprednisone/corticosteroids) administered at any point during stay

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19410 Brain Motor Control Assessment (BMCA) - Test anatomic site

Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C19257 Residence area type

Type describing the participant's/subject's current location of residence

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19094 Gastrointestinal tract surgical procedure other text

The free text field related to "Gastrointestinal tract surgical procedure indicator" specifying other text. Type of procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19201 Pre spinal cord lesion endocrine metabolic condition diagnosed other text

The free text field related to "Pre spinal cord lesion endocrine metabolic condition diagnosed type" specifying the other text. Type of pre spinal cord lesion endocrine & metabolic condition

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19079 Method Used Type

The type of method used for measuring temperature

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C19159 Care provision level

The level of care provided to participant by health care facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19410 Brain Motor Control Assessment (BMCA) - Test anatomic site

Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19426 Brain Motor Control Assessment (BMCA) - Fast as possible antagonist burst presence indicator

Indicator for the presence of an antagonist burst in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C21647 Hand preference pre-injury type

Hand which the participant/subject used predominantly, not necessarily the hand he/she wrote with exclusively prior to injury

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C22249 Dual X-ray absorptiometry total hip bone mineral density value

The value related to bone mineral density (BMD) found in the total hip through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19352 Quantitative sensory testing light touch assessment result

Result for assessment of light touch sensation in quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19453 Spine sagittal canal diameter caudal injury measurement

Measurement of sagittal canal diameter caudal to injury

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19136 Rehabilitation services assessment/reception indicator

Indicator for the assessment for or reception of rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19109 Upper extremity surgery right soft tissue other performed indicator

The indicator for the surgical procedure of the restoration of something other on the right side in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22353 Laboratory procedure renin aldosterone function aldosterone seat stand serum value

The value related to concentration of plasma renin when participant/subject is seated or standing

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22279 Thyroid disease prior diagnosis type

Type of prior diagnosis for thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 351 - 375 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.