CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1803-C19261	C19261	Imaging magnetic resonance imaging quality result	Image quality of magnetic resonance image	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19159	C19159	Care provision level	The level of care provided to participant by health care facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19492	C19492	Spinal cord injury upper extremity shoulder function status	The status of shoulder function as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C19785	C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19128	C19128	Facility arrival date	Date when patient arrived at facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21671	C21671	Urinary tract antibiotic antiseptic use reason	Reason antibiotics or antiseptics were used for the urinary tract	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20373	C20373	Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category	The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22294	C22294	Thyroid disease prior diagnosis other date	Date when other thyroid disease was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19381	C19381	Spine extra-axial fluid upper limit level anatomic site	Upper limit of level for anatomic site as related with an overdrainage of cerebrospinal fluid	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C21657	C21657	Rehabilitation facility type	The type of rehabilitation facility to which the participant was discharged	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22190	C22190	Laboratory procedure two hour insulin blood value	This variable assesses insulin reserve and peripheral insulin sensitivity	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19329	C19329	Spine recording-reference electrode configuration type	Type of electrode configuration of spine recording-reference	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19389	C19389	Spine ligamentous injury rupture status	Status of ligamentous injury or rupture in spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19493	C19493	Spinal cord injury upper extremity assistive device use frequency value	The frequency of use of assistive devices for upper extremity in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19478	C19478	Spinal cord injury performance rate scale	The performance or satisfaction rating after spinal cord injuiry	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22235	C22235	Laboratory procedure N telopeptide plasma serum value	Value of N telopeptide plasma serum taken in the laboratory procedure	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53031	C53031	Digital rectal stimulation evacuation anorectum past four week average frequency	The indicator related to digital rectal stimulation or evacuation of the anorectum	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19350	C19350	Pulse count	Number of pulses	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19451	C19451	Spine canal cord level anatomic site	Anatomic level of spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19501	C19501	Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text	The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19155	C19155	Specialized SCI center follow-up care indicator	Indicator for follow-up care from a specialized SCI center	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19486	C19486	Leisure activity hour week count	The number of hours per week of spare time activities	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 301 - 325 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.