CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1735-C19368	C19368	Electrophysiology repetitive stimulation count	The number of repetitions of a specific stimulus applied in a single series	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19161	C19161	Participant safety compromising medical condition indicator	Indicator for serious co-morbid or concomitant medical condition that, in the opinion of the investigator, would compromise the safety of the patient/participant or compromise the participant's ability to participate in the study	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19410	C19410	Brain Motor Control Assessment (BMCA) - Test anatomic site	Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19246	C19246	Electrical perceptual threshold average value	Average value of electrical perceptual thresholds	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C19181	C19181	Steroid administration other text	The free-text field related to 'Steroid administration type' specifying other text. Type of steroids (methylprednisone/corticosteroids) administered at any point during stay	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19095	C19095	Pressure ulcer surgical treatment indicator	Indicator for surgical treatment of pressure ulcer	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19241	C19241	Sympathetic skin response mono poly-phasic type	Type of sympathetic skin response phase	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19202	C19202	Pre spinal cord lesion neuro-musculoskeletal history type	Type of neuro-musculoskeletal history prior to spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19340	C19340	Mean arterial pressure measurement value	Result of a mean average pressure determination, expressed as a numeric value in millimeters of mercury (mmHg) to the nearest even number. The average pressure on the arteries from the beginning of one heartbeat to the beginning of the next heartbeat. Formally, it is the product of the cardiac output and the systemic vascular resistance, plus the central venous pressure	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C19179	C19179	Pre spinal cord lesion endocrine metabolic condition diagnosed type	Type of endocrine & metabolic condition diagnosed before spinal cord lesion	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19426	C19426	Brain Motor Control Assessment (BMCA) - Fast as possible antagonist burst presence indicator	Indicator for the presence of an antagonist burst in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19401	C19401	Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration	Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C19190	C19190	Examination day cardiovascular function medication indicator	Indicator for medication affecting cardiovascular function on the day of the examination	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19103	C19103	Upper extremity surgery right soft tissue reconstruction tendon wrist performed indicator	The indicator for the surgical procedure of the right tendon for wrist extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19210	C19210	Degenerative spine disorder surgery caused indicator	Indicator for surgery caused by degenerative spine disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20382	C20382	Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale	The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19415	C19415	Brain Motor Control Assessment (BMCA) - Muscle movement type	Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22314	C22314	Laboratory procedure adrenal function fasting cortisol serum value	The value related to concentration of cortisol tested between 6 and 8 am, following a fast	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19111	C19111	Upper extremity surgery right osteotomy humerus performed indicator	The indicator for the surgical procedure of the restoration of the right humerus in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19282	C19282	Secondary death cause ICD-10-CM code	ICD-10 code that describes the secondary cause of participant/subject's death	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19496	C19496	Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site	The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19147	C19147	Therapy session average duration time	The average time duration of a therapy session	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19481	C19481	Spinal cord injury feeding ability status	The status for feeding ability and spinal cord injury	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.