CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1888
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19478 Spinal cord injury performance rate scale

The performance or satisfaction rating after spinal cord injuiry

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22306 Laboratory procedure thyroid function triiodothyronine resin uptake serum value

The value related to triiodothyronine (T3) resin uptake in serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19425 Brain Motor Control Assessment (BMCA) - Fast as possible termination time

Time of termination recorded in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing

Exploratory Demographics Spinal Cord Injury Spinal Cord Injury
C19208 Pre-existing degenerative spine disorders specify diagnosis name

Specifies name of pre-existing degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19368 Electrophysiology repetitive stimulation count

The number of repetitions of a specific stimulus applied in a single series

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19486 Leisure activity hour week count

The number of hours per week of spare time activities

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19169 Special care unit discharge date

Date at which participant was discharged from special care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C22327 Laboratory procedure gonadal function albumin serum value

The value related to concentration of albumin in the serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22231 Laboratory procedure 25 hydroxy vitamin D serum value

This variable documents low or normal body stores of vitamin D

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19246 Electrical perceptual threshold average value

Average value of electrical perceptual thresholds

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C19216 Systemic neuro-degenerative disorder surgery caused description

Description of surgery caused by systemic neuro-degenerative disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C19241 Sympathetic skin response mono poly-phasic type

Type of sympathetic skin response phase

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C22341 Laboratory procedure anterior pituitary function menstrual cycle time type

The type related to cycle time of the menstrual the female subject/participant

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19460 Spine canal cord measurement not applicable indicator

Indicator for not applicable response

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19145 Activity frequency

The frequency of the activity related to rehabilitation services

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19116 Upper extremity surgery left osteotomy ulnar performed indicator

The indicator for the surgical procedure of the restoration of the left ulnar in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19496 Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site

The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19472 Spine lower level anatomic site

Anatomic site on the lower level of the spinal cord

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19156 General rehabilitation center follow-up care indicator

Indicator for follow-up care from a general rehabilitation center

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19360 Transcranial magnetic stimulation coil type

Type of stimulating coil used during transcranial magnetic stimulation

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19124 Upper extremity surgery left other performed indicator

The indicator for other surgical procedure on the left side

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
Displaying 251 - 275 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.