CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1719-C19121	C19121	Upper extremity surgery right implantable FES performed indicator	The indicator for surgical procedure on the right side with an Implantable FES	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19100	C19100	Stabilization and fusion segment level	Level of stabilization and fusion segment in surgical procedure	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19353	C19353	Sensory evoked potential stimulation threshold assessment type	Type of stimulation threshold assessed in sensory evoked potential testing	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21671	C21671	Urinary tract antibiotic antiseptic use reason	Reason antibiotics or antiseptics were used for the urinary tract	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19080	C19080	Spinal intervention surgical procedure performance nonparticipating facility indicator	Indicates performance of a spinal intervention or a surgical procedure at a nonparticipating facility	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20362	C20362	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale	The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22277	C22277	Thyroid disease assessment date	Date when information was collected for prior thyroid disease	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19464	C19464	Imaging cord transaction indicator	Indicator for cord transaction in magnetic resonance imaging	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C19374	C19374	Test sequence order number	The position of the selected test in the testing sequence being recorded	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19252	C19252	Imaging pre-existing hardware surgery type	Type of pre-existing hardware or surgery	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19130	C19130	Facility discharge date	Date when patient was discharged from facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19096	C19096	Surgery performed date	Date of last surgical intervention	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C19177	C19177	Pre spinal cord lesion pulmonary conditions present type	Types of pulmonary conditions present before spinal cord lesion	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1721-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	Supplemental	Other Investigational Treatments	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20370	C20370	Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale	The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22287	C22287	Thyroid disease prior thyroiditis cancer diagnosis date	Date when prior thyroid cancer was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1780-C58643	C58643	Electrophysiology facilitation type	Type of facilitation or reinforcement employed in electrophysiology testing	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19376	C19376	Imaging exam pulse sequence inventory indicator	Indicator for exam pulse sequence inventory	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19167	C19167	Special care unit type	Type of special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19497	C19497	Spinal cord injury upper extremity hand reconstructive surgery performed indicator	The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19133	C19133	Vital status type	The type of vital status held by the patient on discharge	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22305	C22305	Laboratory procedure thyroid function thyroxine serum value	The value related to concentration of thyroxine (t4) in the serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18765	C18765	Surgical or therapeutic procedure other text	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.