CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22297 Laboratory procedure thyroid function diagnosis date

Date when thyroid function laboratory tests or new diagnosis were performed/made

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19382 Spine extra-axial fluid lower limit level anatomic site

The anatomic site lower limit of level with an overdrainage of cerebrospinal fluid

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19501 Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text

The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22191 Laboratory procedure calcium bone metabolism collected date

Date (and time if applicable and known) when the calcium bone metabolism specimen was collected

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental Imaging Spinal Cord Injury Spinal Cord Injury
C19330 Sensory evoked potential stimulation count

The number of stimulations in sensory evoked potential

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19390 Spine ligamentous injury/rupture level anatomic site

Spinal level of ligamentous injury or rupture

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19494 Spinal cord injury upper extremity function complications status

The status of complications to upper extremity function like pain, spasms, contractures, edema, etc

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19145 Activity frequency

The frequency of the activity related to rehabilitation services

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19479 Spinal cord injury mobility moderate distance status

The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22240 Laboratory procedure N telopeptide urine value

Value of N telopeptide urine taken from laboratory procedure

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19351 Quantitative sensory testing pinprick assessment result

Result for the assessment of pinprick sensation in thermal quantitative sensory testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C19452 Spine sagittal canal diameter injury measurement

Measurement of sagittal canal diameter injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19156 General rehabilitation center follow-up care indicator

Indicator for follow-up care from a general rehabilitation center

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19487 Relationship family contact count

The number of family members in contact with

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C22269 Dual X-ray absorptiometry proximal tibia bone mineral density value

The value related to bone mineral density (BMD) found in the proximal tibia through dual X-ray absorptiometry (DEXA)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19460 Spine canal cord measurement not applicable indicator

Indicator for not applicable response

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19314 Quantitative sensory testing threshold value

The threshold value for the indicated trial number for the sensation and threshold types selected in Quantitative Sensory Testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19332 Imaging two dimensional radio frequency tilt angle measurement

The measurement in degree for the two dimensional radio frequency tilt angle in imaging

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C20366 Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale

The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
Displaying 1 - 25 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.