CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C19457	Spine transverse cord diameter injury measurement	Measurement of transverse cord diameter injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
C19225	Quantitative sensory testing outcome sense type	The type of outcome sensation being evaluated during Quantitative Sensory Testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
C22233	Laboratory procedure parathyroid hormone plasma value	This variable documents the level of parathyroid gland function	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19236	Sympathetic skin response epithelial anatomic site	Anatomic site of epithelial tissue as related to sympathetic skin response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
C19465	SCI chronic finding type	Type of chronic finding for spinal cord injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
C19178	Pre spinal cord lesion pulmonary condition other text	The free-text field related to "Pre spinal cord lesion pulmonary condition type" specifying other text. Type of pulmonary conditions present before spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
C19310	Latency average value	The average value of latency	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
C19378	Quantitative Sensory Testing sensation test type	The type of sensation evaluated in Quantitative Sensory Testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
C19204	Pre-existing congenital deformity specify anatomic site	Anatomic site of pre-existing congenital deformity of spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19131	Facility discharge time	The time at which the patient was discharged from the facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
C19084	Spinal elements close manipulation & reduction indicator	The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19207	Congenital deformity surgery date	The date of surgery on congenital deformity of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
C19168	Special care unit admission date	Date at which participant was admitted to special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
C51973	Child and Adolescent Scale of Participation (CASP) - Neighborhood movement scale	Scale to rate level of participation in moving around the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation - Community Participation (CASP)	Supplemental	Child and Adolescent Scale of Participation (CASP)	True	Spinal Cord Injury	Spinal Cord Injury
C19215	Systemic neuro-degenerative disorder surgery caused indicator	Indicator for surgery caused by systemic neuro-degenerative disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
C19327	Sensory evoked potential side nerve dermatome description text	Text of description of sensory evoked potential side nerve dermatome	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
C58652	Fall record time AM PM category	Category of the part of the day in which the time of the subject/participant's fall occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
C19387	Spine traumatic herniated nucleus polposus type	Type of traumatic herniated nucleus polposus in the spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
C58641	Cardiovascular disease family history type text	Text field for indicating the type(s) of cardiovascular disease of which there is a history in the subject/participant's family	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C19447	Spine sagittal canal diameter rostral injury measurement	Measurement of sagittal canal diameter rostral to injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
C19184	Urinary tract drug use indicator	Indicator for urinary tract drugs used within the last year	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19499	Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text	The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C22178	Laboratory procedure oral glucose tolerance test diagnostic classification type	This variable will assess the ability to handle an oral glucose load	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19082	Interventionprocedure date	Date (and time if applicable and known) intervention/procedure was performed	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.