CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0009-C60386	C60386	Adverse event site aware date and time	Date (and time, if applicable and known) on which the site first became aware of the adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60387	C60387	Adverse event ongoing indicator	Indicator of whether the adverse event experienced by the participant is ongoing	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60388	C60388	Adverse event severity intensity CDISC grade	Grade of severity or intensity of the adverse event according to the Clinical Data Interchange Standards Consortium (CDISC) terminologies	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0009-C60389	C60389	Adverse event study intervention action take type other text	The free-text field related to 'Adverse event study intervention action take type', specifying other text. Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F0828-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22285	C22285	Thyroid disease prior thyroiditis diagnosis date	Date when prior thyroiditis disease was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19404	C19404	Brain Motor Control Assessment (BMCA) - Repeatability over three trials result	Repeatability of response occurring over three trials as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19090	C19090	Stabilization and fusion segment number	The number of the stabilization and fusion segment in the surgical procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19176	C19176	Pre spinal cord lesion cardiovascular history condition type	Types of cardiovascular conditions present before spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22300	C22300	Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value	The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18765	C18765	Surgical or therapeutic procedure other text	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19418	C19418	Brain Motor Control Assessment (BMCA) - Comments text	The free-text field for additional comments as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C19262	C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19205	C19205	Congenital deformity surgery caused indicator	Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19483	C19483	Volunteer work hour week count	The number of hours per week in volunteer work	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19166	C19166	Special care unit admittance indicator	Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19438	C19438	Brain Motor Control Assessment (BMCA) - Average maximum pressure value	The average of all maximum pressure values recorded in the designated protocol as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19213	C19213	Pre-existing systemic neuro-degenerative disorder specify diagnosis name	Specifies name of pre-existing systemic neuro-degenerative disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19236	C19236	Sympathetic skin response epithelial anatomic site	Anatomic site of epithelial tissue as related to sympathetic skin response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22336	C22336	Laboratory procedure anterior pituitary function leuteinizing hormone plasma value	The value related to concentration of leuteinizing hormone (LH) in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22244	C22244	Laboratory procedure osteocalcin plasma serum value	This variable documents the level of bone formation	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19324	C19324	Abbreviated injury scale grade value	Value of grade on the association impairment scale	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19364	C19364	Glasgow coma scale date and time	Date (and time, if known) of Glasgow Coma Scale assessment	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22349	C22349	Laboratory procedure renin aldosterone function renin supine plasma value	The value related to concentration of plasma renin when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.