CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2177-C22194	C22194	Laboratory procedure calcium urine value	This variable documents renal excretion of calcium	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19083	C19083	Non-surgical bed rest external immobilization indicator	The indicator related to non-surgical bed rest and external immobilization	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19122	C19122	Upper extremity surgery left implantable FES performed indicator	The indicator for surgical procedure on the left side with an Implantable FES	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19393	C19393	Spine degenerative abnormality lower limit level anatomic site	The anatomic site level of spine related to the degenerative features of abnormality	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19497	C19497	Spinal cord injury upper extremity hand reconstructive surgery performed indicator	The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19081	C19081	Spinal intervention or surgical procedure performance study facility indicator	Indicator for performance of a spinal intervention or a surgical procedure at the study facility	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19490	C19490	Spinal cord injury toileting assessment status	The status related to toileting and spinal cord injury	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20353	C20353	Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale	The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22246	C22246	Laboratory procedure procollagen type 1 N-terminal propeptide plasma serum value	Value of procollagen type 1 N-terminal propeptide plasma serum in the laboratory procedure	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19455	C19455	Spine transverse canal diameter caudal injury measurement	Measurement of transverse cord diameter rostral to injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C19223	C19223	ISNCSCI left neurological injury level anatomic site	The most caudal segment of the cord with intact sensation and antigravity (3 or more) muscle function strength on the left side, provided that there is normal (intact) sensory and motor function rostrally respectively. The NLI is the most cephalad of the sensory and motor levels	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19090	C19090	Stabilization and fusion segment number	The number of the stabilization and fusion segment in the surgical procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19176	C19176	Pre spinal cord lesion cardiovascular history condition type	Types of cardiovascular conditions present before spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20361	C20361	Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale	The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19463	C19463	Acute spinal cord injury features integer range value	Value on the integer range for acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C19184	C19184	Urinary tract drug use indicator	Indicator for urinary tract drugs used within the last year	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19098	C19098	Surgery scoliosis performed date	Date of surgical treatment of scoliosis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19205	C19205	Congenital deformity surgery caused indicator	Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20369	C20369	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale	The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22286	C22286	Thyroid disease prior thyroid cancer diagnosis type	Type of prior thyroid cancer diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C21671	C21671	Urinary tract antibiotic antiseptic use reason	Reason antibiotics or antiseptics were used for the urinary tract	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19106	C19106	Upper extremity surgery left soft tissue restoration pinch performed indicator	The indicator for the surgical procedure of the restoration of left pinch and/or grasp in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.