CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

1888 results.
Operations
Selected 13 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60387 Adverse event ongoing indicator

Indicator of whether the adverse event experienced by the participant is ongoing

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C60386 Adverse event site aware date and time

Date (and time, if applicable and known) on which the site first became aware of the adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C18659 Unexpected adverse event indicator

Indicator of whether the adverse event is unexpected

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02311 Adverse event MedDRA lowest level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02307 Adverse event verbatim term text

The free-text field that describes the adverse event word for word as described by the participant

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C02309 Serious adverse event indicator

Indicator of whether the adverse event is serious

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
1888 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.