CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20369 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale

The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20353 Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale

The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C55478 Spinal cord dysfunction non traumatic other specify text

The free text field to describe the other type of non-traumatic spinal cord dysfunction

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C19785 Medical history pulmonary bilevel positive airway pressure start date

Date of start of bilevel positive airway pressure

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22277 Thyroid disease assessment date

Date when information was collected for prior thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22287 Thyroid disease prior thyroiditis cancer diagnosis date

Date when prior thyroid cancer was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22305 Laboratory procedure thyroid function thyroxine serum value

The value related to concentration of thyroxine (t4) in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22196 Laboratory procedure calcium creatinine urine value

The value related to subject/participant's concentration of calcium/creatinine in the urine

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22247 Dual X-ray absorptiometry scan osteoporosis diagnosis anatomic site

This variable documents bone mineral density at skeletal sites of interest, including the distal femur, proximal tibia, total hip, femoral neck, and radius (at one-third site)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22350 Laboratory procedure renin aldosterone function renin seat stand plasma value

The value related to concentration of plasma renin when participant/subject is seated or standing

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22322 Laboratory procedure gonadal function testosterone plasma serum value

The value related to concentration of the testosterone in the plasma/serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22338 Laboratory procedure anterior pituitary function follicular stimulating hormone plasma value

The value related to concentration of follicular stimulating hormonr (FSH) in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22231 Laboratory procedure 25 hydroxy vitamin D serum value

This variable documents low or normal body stores of vitamin D

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22249 Dual X-ray absorptiometry total hip bone mineral density value

The value related to bone mineral density (BMD) found in the total hip through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22352 Laboratory procedure renin aldosterone function aldosterone supine serum value

The value related to concentration of serum aldosterone when participant/subject is supine

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22325 Laboratory procedure gonadal function sex hormone binding globulin serum value

The value related to concentration of sex hormone binding globulin in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22339 Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value

The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22293 Thyroid disease prior thyroid nodule diagnosis date

Date when prior thyroid nodule was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22233 Laboratory procedure parathyroid hormone plasma value

This variable documents the level of parathyroid gland function

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22251 Dual X-ray absorptiometry femoral neck bone mineral density value

The value related to bone mineral density (BMD) found in the femoral neck through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.