CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0825-C06316	C06316	Menstruation scale	Scale for how the female participant's menstruation is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22837	C22837	Pain past treatment other text	Free-text field to specify other types of treatment participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06322	C06322	SCI Classification sensory zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06239	C06239	Constipation lifestyle alteration past three months scale	The scale that assesses lifestyle alteration due to constipation within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21638	C21638	Fall details footwear specify text	The free-text field to specify the type of other footwear worn when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06212	C06212	Bowel function SCI data constipation duration	The duration of participant's/subject's constipation.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C18799	C18799	Non traumatic spinal cord injury aetiology axis 1 level 4 other text	The free-text field related to 'Non traumatic spinal cord injury aetiology axis 1 level 4 category' specifying other text. The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06465	C06465	Non traumatic spinal cord injury etiology axis 1 level 4 category	The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18132	C18132	Cystogram code	Cystogram code	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C18173	C18173	Skin thermoregulation past year laterality type	Side of the anatomic site examined or affected	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06335	C06335	SCI Classification pin prick total score	Total score of a pin prick on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18143	C18143	Stool defecation assistance past three months average indicator	Indicator for whether the average time during bowel movement that stool intermittently or continuously comes out with or without assistance is not applicable or unknown	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22805	C22805	Pain average duration	How long the participant's pain usually lasts	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06117	C06117	Peak expiratory flow measurement	Peak expiratory flow (PEF) value measured in liters/minute. PEF is the maximal expiratory flow rate achieved during the forced vital capacity (FVC) maneuver	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06073	C06073	Pain treatment indicator	Indicator for whether the participant is using or receiving any treatment for the pain experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C17419	C17419	Urinary culture status	Status of urine culture result	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06310	C06310	Sexual problem unrelate spinal cord lesion indicator	Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18787	C18787	Defecation method bowel care procedure used past four week supplementary other text	The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06022	C06022	Urinary incontinence collect appliance type use indicator	Indicator of whether or not the type of collecting appliance for urinary incontinence was in use on the date of data collection	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06253	C06253	Heart rate status	Findings after taking a participant's pulse during the examination	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06319	C06319	Ejaculation scale	Scale for how the male participant's ejaculation is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18149	C18149	Lipid disorder specify name	Specifies the name of lipid disorder diagnosed	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.