CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2604-C06314	C06314	Reflex genital arousal scale	Scale for how the female's reflex genital arousal is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06260	C06260	Bladder function bladder compliance type	Type of bladder compliance of the participant/subject during filling cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C06359	C06359	Osteoporosis diagnosis method type	Method used to diagnosis osteoporosis	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06375	C06375	Pressure ulcer largest depth measurement	Measurement of the largest depth of the pressure ulcer in mm	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C53047	C53047	Oral laxative tablet capsule granulate type	Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06413	C06413	Spinal surgery indicator	Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column	Supplemental	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06330	C06330	SCI Classification sensory zone of partial preservation left result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the left side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22833	C22833	Pain past treatment procedural intervention type	The type of past procedural interentions the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06465	C06465	Non traumatic spinal cord injury etiology axis 1 level 4 category	The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C06195	C06195	Constipating agent fecal incontinence drug last four week indicator	Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06461	C06461	Non traumatic spinal cord injury etiology classification axis 1 level 2 category	The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18796	C18796	Medication cardiovascular function other text	The free-text field related to 'Medication cardiovascular function type' specifying other text. Type of medication affecting cardiovascular functions	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06407	C06407	Thermoregulation other issue past three month result text	Indicator of whether the subject had other types of thermoregulation conditions or events after spinal cord lesion within the last three months	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06215	C06215	Abdominal bloating frequency	The frequency of abdominal bloating within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06012	C06012	Urinary tract impairment unrelate injury indicator	Indicator of urinary tract impairment unrelated to spinal cord lesion	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06410	C06410	SCI Classification S4-S5 sensory function result	Result of the extent to which motor or sensory function is preserved in the sacral segments S4-S5	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22841	C22841	Pain current treatment Patient Global Impression Change text	Free-text field to specify the Patient Global Impression of Change (PGIC) of treatments the participant is currently receiving	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18136	C18136	Void cystogram results type	Results of voiding cystogram performed on the urinary tract	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22801	C22801	Pain last week day count	The number of days the participant has experienced pain in the last week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06258	C06258	Bladder function bladder sensation type	Documents the bladder sensation during filling cystometry. Although the bladder sensation is assessed during filling cystometry the assumption that it is sensation from the bladder alone, without urethral or pelvic components may be false (Abrams et al. 2002). Normal bladder sensation can be judged by three defined points noted during filling cystometry and evaluated in relation to the bladder volume at that moment and in relation to the patient's symptomatic complaints	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06023	C06023	Urinary tract drug type	Type of drug, systemic or intravesical, for the urinary tract used	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C06188	C06188	Defecation method bowel care procedure used past four week supplementary type	Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06173	C06173	Gastrointestinal anal sphincter dysfunction unrelate SCI indicator	Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.