CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1601 - 1625 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06421 SCI Classification light touch single side score

Score of sensation of light touch for the specific side of the body

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22815 Injury level pinprick hyperalgesia intensity scale

The scale related to intensity if hyperalgesia for pinprick at the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22312 Laboratory procedure thyroid function thyroid antibodies status

The status related to thyroid antibodies

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06450 Neuromuscular scoliosis indicator

Indicator of any appreciable observable lateral deviation in the normally straight vertical line of the spine due to the sequelae of spinal cord injury (SCI)

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06072 Pain interfere sleep scale

Scale that evaluates to what extent pain has interfered with the participant's sleep

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06251 Medication cardiovascular function type

Type of medication affecting cardiovascular functions.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06221 Fecal incontinence solid stools frequency

The frequency of fecal incontinence to solid stools within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22823 Injury below level cold other text

Free-text field to indicate what other type of response the participant experiences from cold below the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19502 Tobacco cigarettes smoke daily average value

Tobacco cigarettes smoked daily average number

 Supplemental Alcohol and Tobacco Use False Spinal Cord Injury Spinal Cord Injury
C06313 Psychogenic genital arousal scale

Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06373 Skin thermoregulation pressure ulcer large opening diameter measurement

Measurement of the largest opening diameter of the pressure ulcer in mm

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06236 Stool defecation assistance past three months average duration

The average time duration in minutes during bowel movement that stool intermittently or continuously (in the case of a single defecation) comes out with or without assistance within the last three months

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06326 SCI Classification sensory exam anatomic site

Spinal cord level evaluated during the sensory examination

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22831 Pain past treatment oral topical medication type

The type of past oral and topical medication the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C06463 Non traumatic spinal cord injury iatrogenic indicator

Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury

 Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets False Spinal Cord Injury Spinal Cord Injury
C06023 Urinary tract drug type

Type of drug, systemic or intravesical, for the urinary tract used

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C06426 Spinal cord injury type

The mechanism of spinal cord injury

 Supplemental History of Injury False Spinal Cord Injury Spinal Cord Injury
C18794 Cardiovascular event after spinal cord lesion other text

The free-text field related to 'Cardiovascular event after spinal cord lesion type' specifying other text. Events related to cardiovascular functions that may have occurred at any time after the spinal cord lesion

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06405 Hyperhidrosis past three months status

Status of whether the subject had hyperhidrosis after spinal cord lesion within the last three months. Hyperhidrosis is defined as excessive sweating above or below level of injury in the absence of increased ambient temperature

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06348 SCI Classification anal sensation indicator

Indicator of whether or not the person has any anal sensation

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22839 Pain current treatment dose text

Free-text field to specify dose of treatments the participant is currently receiving

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06071 Pain interfere mood scale

Scale that evaluates to what extent pain has interfered with the participants mood

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 1601 - 1625 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.