CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Exploratory Family History Spinal Cord Injury Spinal Cord Injury
C19722 Laboratory procedure glycosylated hemoglobin measurement

Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06358 Diabetes mellitus type

Type of diabetes mellitus

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06358 Diabetes mellitus type

Type of diabetes mellitus

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.