CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 2057
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

 Core General Core False Spinal Cord Injury Spinal Cord Injury
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

 Core General Core False Spinal Cord Injury Spinal Cord Injury
C58652 Fall record time AM PM category

Category of the part of the day in which the time of the subject/participant's fall occurred.

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
C58648 Quantitative sensory testing increase stimulation rate unit of measure

The unit of measure for the rate of increase of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing increase stimulation rate value".

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C58649 Quantitative sensory testing decrease stimulation rate unit of measure

The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value".

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C58645 Oral laxative drops liquid type other text

Text field for specifying other types of liquid oral laxatives.

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C58644 Diaper pad plug use past three month frequency category

Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence.

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C58643 Electrophysiology facilitation type

Type of facilitation or reinforcement employed in electrophysiology testing.

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C58642 Cardiovascular disease family history type unknown indicator

Indicator of whether the type of cardiovascular disease of which the subject/participant's family has a history is unknown.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C58641 Cardiovascular disease family history type text

Text field for indicating the type(s) of cardiovascular disease of which there is a history in the subject/participant's family.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19222 ISNCSCI right neurological injury level anatomic site

The most caudal segment of the cord with intact sensation and antigravity (3 or more) muscle function strength on the right side, provided that there is normal (intact) sensory and motor function rostrally respectively. The NLI is the most cephalad of the sensory and motor levels.

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C06414 Spinal cord injury etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude.

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C06414 Spinal cord injury etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude.

 Core History of Injury False Spinal Cord Injury Spinal Cord Injury
C06414 Spinal cord injury etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude.

 Supplemental International SCI Core Data Set False Spinal Cord Injury Spinal Cord Injury
C18140 Surgical or therapeutic gastrointestinal procedure other text

Text to describe another surgical procedure on the gastrointestinal tract that was performed.

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

 Supplemental Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C54705 Epworth Sleepiness Scale (ESS) - Total score

Total score of all questions on the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54701 Epworth Sleepiness Scale (ESS) - Doze off likelihood recline rest afternoon code

The code denoting the subect/participant's self-reported likelihood of dozing off while lying down to rest in the afternoon, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54702 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit talk code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and talking, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54703 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit after lunch code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting quietly after a lunch that did not include alcohol, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54704 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54697 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54698 Epworth Sleepiness Scale (ESS) - Doze off likelihood watch television code

The code denoting the subect/participant's self-reported likelihood of dozing off while watching television (TV), as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
C54699 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit inactive public place code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting inactive in a public place (for example during a meeting or movie), as part of the Epworth Sleepiness Scale (ESS)

 Supplemental Epworth Sleepiness Scale (ESS) ? Adult Version True Spinal Cord Injury Spinal Cord Injury
Displaying 1 - 25 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.