CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 2057
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C06224 Bowel care position past three months type

The indicator of whether the bowel care position was used within the past three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06449 Heterotopic ossification detection method type

Type of method used to document the heterotopic ossification

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C06248 Cardiovascular event after spinal cord lesion date and time

Date (and time, if applicable and known) on which the cardiovascular event occurred after the spinal cord lesion.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks.

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06463 Non traumatic spinal cord injury iatrogenic indicator

Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury

 Supplemental History of Injury False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06291 Medication affecting cardiovascular function type exam day indicator

Indicator of whether the participant/subject used the specific type of medication affecting cardiovascular functions on the day of the examination

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06198 Perianal problem type

Type of problem with the anus found in the perianal space

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06372 Pressure ulcer small opening diameter measurement

Measurement of the smallest opening diameter of the pressure ulcer in mm

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06323 SCI Classification motor zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06147 Bladder diverticulum indicator

Indicator of whether there is bladder diverticulum. This means diverticula of any size within the bladder or bladder neck were found.

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22833 Pain past treatment procedural intervention type

The type of past procedural interentions the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22645 Spinal cord injury non traumatic etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude.

 Core History of Injury False Spinal Cord Injury Spinal Cord Injury
C06462 Non traumatic spinal cord injury onset type

The type of onset timeframe over which the non-traumatic spinal cord injury developed

 Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets False Spinal Cord Injury Spinal Cord Injury
C06147 Bladder diverticulum indicator

Indicator of whether there is bladder diverticulum. This means diverticula of any size within the bladder or bladder neck were found.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C18790 Perianal problem other text

The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06404 Hypothermia past three months status

Status of whether the subject had hypothermia after spinal cord lesion within the last three months. Hypothermia is defined as rectal temperature below 35 degrees Celsius.

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06003 Injury associate spinal cord injury indicator

Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery.

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C06336 SCI Classification motor zone of partial preservation left result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the left side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06163 Striated urethral sphincter during voiding status

Status of the striated urethral sphincter during voiding

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22841 Pain current treatment Patient Global Impression Change text

Free-text field to specify the Patient Global Impression of Change (PGIC) of treatments the participant is currently receiving

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18800 Non traumatic spinal cord injury aetiology axis 1 level 5 other text

The free-text field related to 'Non traumatic spinal cord injury aetiology axis 1 level 5 category' specifying other text. The category of level 5 of axis 1 to classify the cause of non-traumatic spinal cord injury

 Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets False Spinal Cord Injury Spinal Cord Injury
C06163 Striated urethral sphincter during voiding status

Status of the striated urethral sphincter during voiding

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06411 Inpatient final discharge date and time

Date (and time, if applicable and known) of discharge from the last inpatient hospital when all planned acute care and rehabilitation phases of treatment are completed.

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.