CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 151 - 175 of 2057
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available.

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C17418 Urine dipstick test leukocyte esterase status

Status of leukocyte esterase presence in urine dipstick test which indicates the presence of white blood cells in a urine sample.

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18146 HDL cholesterol value

HDL cholesterol measured

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded.

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06112 Ventilatory assistance type

Type of assistance device utilized to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06017 Bladder empty method supplementary type

Supplementary type(s) of bladder emptying method(s)

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18142 Bowel care initiation stool out past three months average indicator

Indicator for whether the bowel care to stool coming out average time was not applicable or unknown.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22275 Thyroid disease prior diagnosis indicator

The indicator related to prior diagnosis of thyroid disease.

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06071 Pain interfere mood scale

Scale that evaluates to what extent pain has interfered with the participants mood.

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C18163 Gonadal disease specify name

Specifies the name of gonadal disease

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06322 SCI Classification sensory zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body.

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C18120 Urinary tract impairment unrelate injury name

Name of indicator of urinary tract impairment unrelated to spinal cord lesion.

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22803 Pain manageable last week day count

Number of days the participant had manageable pain in the last week

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C21618 Bowel care time stool pass care past three month average indicator

The indicator related to average time duration spent waiting after last stool passes before ending bowel care within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06103 Tobacco smoke quit date

Date (and time, if applicable and known) the participant/subject quit smoking

Supplemental Alcohol and Tobacco Use Spinal Cord Injury Spinal Cord Injury
C06335 SCI Classification pin prick total score

Total score of a pin prick on the right and left sides of the body.

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C22811 Injury below level dynamic light touch other text

Free-text field to indicate what other type of response the participant experiences from dynamic light touch below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06428 Spinal column injury extent type

In the presence of an injury through the spine, this element documents whether there is a single level spinal column injury or if there are multiple levels involved.

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06420 SCI Classification motor strength lower limb single side score

Score of motor strength for the lower limb on the specific side.

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C18130 Renography urinary tract other finding text

The free-text field for other findings from the urinary tract renography study.

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06229 Bowel management independence past three months scale

The scale that assesses the participant's degree of independence during bowel management within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06450 Neuromuscular scoliosis indicator

Indicator of any appreciable observable lateral deviation in the normally straight vertical line of the spine due to the sequelae of spinal cord injury (SCI)

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06317 Psychogenic erection scale

Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration.

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06249 Cardiovascular function after last three month type

Types of cardiovascular function that may have occurred after the spinal cord lesion (within three months).

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 151 - 175 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.