CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0824-C06070	C06070	Pain interfere daily activity scale	Scale that evaluates to what extent pain has interfered with the participant's daily activities	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C17414	C17414	Urinary tract infection symptom type	Type of sign(s)/symptom(s) associated with a bacterial infectious process affecting any part of the urinary tract, most commonly the bladder and the urethra	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06004	C06004	Ventilatory assistance utilization frequency indicator	Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06436	C06436	Neuro-Musculoskeletal condition anatomic site	Anatomic site of the neuro-musculoskeletal condition experienced or diagnosed	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06429	C06429	Spinal column injury number	Number assigned to the spinal column injury. The spinal column injuries are assigned numbers starting with the most cephalic spinal column injury	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22817	C22817	Injury below level pinprick other text	Free-text field to indicate what other type of response the participant experiences from pinprick below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06264	C06264	Bladder function bladder capacity value	Value of the bladder capacity of participant/subject during cystometry	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06253	C06253	Heart rate status	Findings after taking a participant's pulse during the examination	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06194	C06194	Bowel function medication constipating agent type	Type of medication affecting bowel function / constipating agents	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06010	C06010	ASIA Impairment Scale	Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22825	C22825	Pain past treatment physiotherapy type	The type of past physiotherapy treatment the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06126	C06126	Kidney right excretory function measurement	The percentage of excretory function for the right kidney. The combined excretory function for the two kidneys is 100 %	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06375	C06375	Pressure ulcer largest depth measurement	Measurement of the largest depth of the pressure ulcer in mm	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18785	C18785	Gastrointestinal anal sphincter dysfunction unrelate SCI specify text	The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06330	C06330	SCI Classification sensory zone of partial preservation left result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the left side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22833	C22833	Pain past treatment procedural intervention type	The type of past procedural interentions the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06156	C06156	Kidney stone laterality type	The laterality type related to kidney stones present. This means urinary stone(s) was/were found in the renal pelvis or renal parenchyma on either side	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06465	C06465	Non traumatic spinal cord injury etiology axis 1 level 4 category	The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C06195	C06195	Constipating agent fecal incontinence drug last four week indicator	Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06461	C06461	Non traumatic spinal cord injury etiology classification axis 1 level 2 category	The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.