CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0820-C06263	C06263	Bladder function detrusor maximum pressure value	Value of the maximum detrusor pressure on the participant/subject during filling cystometry	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06071	C06071	Pain interfere mood scale	Scale that evaluates to what extent pain has interfered with the participants mood	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06220	C06220	Fecal incontinence liquid stools frequency	The frequency of fecal incontinence to liquid stools within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06115	C06115	Force vital capacity measurement	Forced vital capacity (FVC) value measured in liters using simple spirometry. FVC is defined as the total volume of air that a person can forcibly exhale during a maximal expiratory effort	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06057	C06057	Pain different problem number	Number of different pain problems an individual perceives that he or she has experienced during the last seven days including today. A "pain problem" is defined by the person himself as a pain that has a specific character	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06192	C06192	Fecal incontinence past three month average frequency	Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06412	C06412	Injury vertebral indicator	Whether there was a spinal fracture and/or dislocation in addition to the spinal cord injury. Spinal fracture or dislocation is defined as any break, rupture, or crack through or between any part(s) of the vertebral column from the occiput to the coccyx	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06122	C06122	Renography radioactive isotope type	Type of radioactive isotope used to perform the renography	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06312	C06312	Sexual dysfunction relate spinal cord lesion indicator	Indicator of whether the participant has a history of or reports personal distress as a result of sexual dysfunction. Sexual dysfunction may be regarding desire, arousal, pain or orgasmic dysfunction	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06235	C06235	Bowel care initiation stool out past three months average duration	The average time duration in minutes from initiation of bowel care to first stool coming out within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06150	C06150	Urography method type	Identifies which methods were performed on the urinary tract	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06071	C06071	Pain interfere mood scale	Scale that evaluates to what extent pain has interfered with the participants mood	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06320	C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C18120	C18120	Urinary tract impairment unrelate injury name	Name of indicator of urinary tract impairment unrelated to spinal cord lesion	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06447	C06447	Spasticity spasm indicator	Indicator of the presence of spasticity/spasms	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22820	C22820	Injury level cold other text	Free-text field to indicate what other type of response the participant experiences from cold at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18175	C18175	Cardiovascular function after last three month date	Date (and time, if applicable and known) on which the cardiovascular function occurred within three months after the spinal cord lesion.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06331	C06331	SCI Classification pin prick anatomic site grade	Grade of the ability to sense a pin prick on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06107	C06107	Tobacco pipe bowl smoke daily average value	If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C06003	C06003	Injury associate spinal cord injury indicator	Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C18174	C18174	Pre-exist diagnosis location text	Text describing the diagnosis and location of the pre-existing neuro-musculoskeletal history of either the spin and spinal cord, degenerative spine disorders, or systemic neuro-degenerative disorders	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06354	C06354	Skin thermoregulation pressure ulcer anatomic site	Location on the body of the pressure ulcer	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22828	C22828	Pain past treatment passive stimulaiton therapy other text	Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06419	C06419	SCI Classification motor strength upper limb single side score	Score of motor strength for the upper limb on the specific side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.