CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14643 Functional Disability Inventory (FDI) - child form friend activity scale

The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C14651 Functional Disability Inventory (FDI) - child form watch TV scale

The scale of the child's or adolescent's ability to watch television when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C15913 Quantitative sensory testing stimulation type

Type of QST stimulation

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C15933 Quantitative sensory testing stimulus rest period duration unit of measure

The units used to measure duration between stimulus rest periods

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C14652 Functional Disability Inventory (FDI) - child form walk football field scale

The scale of the child's or adolescent's ability to walk the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C14644 Functional Disability Inventory (FDI) - child form chore scale

The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C21658 Electrodiagnostic exam date

The date of the electrodiagnostic exam testing

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C15918 Quantitative sensory testing test methodology type

Type of methodology used for QST imaging

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C15934 Temperature skin measurement

The participant/subject's baseline skin temperature

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C14653 Functional Disability Inventory (FDI) - child form run football field scale

The scale of the child's or adolescent's ability to run the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C14645 Functional Disability Inventory (FDI) - child form eat meal scale

The scale of the child's or adolescent's ability to eat regular meals when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C15920 Quantitative sensory testing test equipment text

Description of equipment used for testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C15935 Exam room temperature measurement

The exam room temperature at the time of testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C14654 Functional Disability Inventory (FDI) - child form shopping scale

The scale of the child's or adolescent's ability to go shopping when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C14646 Functional Disability Inventory (FDI) - child form up all day scale

The scale of the child's or adolescent's ability to stay awake all day without taking a nap or rest when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C15921 Quantitative sensory testing maximum stimulation intensity value

Measure of the maximum level of stimulation used during the testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C18024 Temperature skin unit of measure

The units of measure for participant/subject's baseline skin temperature

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C14655 Functional Disability Inventory (FDI) - child form sleep scale

The scale of the child's or adolescent's ability to sleep and stay asleep at night when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C14647 Functional Disability Inventory (FDI) - child form riding bus car scale

The scale of the child's or adolescent's ability to ride the bus to school or travel in a car when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C06217 Respiratory discomfort distended abdomen frequency

The frequency of any respiratory discomfort (shortness of breath/difficulty in taking a deep breath) considered to be entirely or partly due to a distended abdomen within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18780 Urinary incontinence collect appliance other text

The free-text field related to 'Urinary incontinence collect appliance type' specifying other text. Type or types of collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06156 Kidney stone laterality type

The laterality type related to kidney stones present. This means urinary stone(s) was/were found in the renal pelvis or renal parenchyma on either side

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
Displaying 51 - 75 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.