CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06223 Bowel care position text

The text of position assumed for bowel care

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18786 Defecation method bowel care procedure used past four week main other text

The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06213 Defecation unsuccessful frequency

The frequency of unsuccessful attempts at defecation within the last three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06252 Compression device type

Any compression device worn by the individual that may affect cardiovascular parameters during the examination.

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C18133 Cystogram performed date

Date Cystogram was performed

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06315 Orgasmic function scale

Scale that assesses orgasmic function. Females: Orgasm is the perception of sensation of feeling good through sexual stimulation, of reaching a climax after which the woman feels gratified. May be accompanied by an overall increase and then decrease in muscle tone. The potential is based on history. Males: Orgasm is the perception of sensation of a peak feeling of sexual release, or climax, after which the man feels gratified. It may be accompanied by an overall increase and then decrease in muscle tone and may or may not be accompanied by ejaculation. The potential is based on history

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C06318 Reflex erection scale

A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06238 Anal incontinence lifestyle alteration past three months scale

The scale that assesses lifestyle alteration due to anal incontinence within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C53029 Defecation uneasiness headache perspiration past four week indicator

The indicator related to uneasiness, headache or perspiration during defecation

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06264 Bladder function bladder capacity value

Value of the bladder capacity of participant/subject during cystometry

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06363 Serum lipid anti lipid therapy indicator

Indicates whether a fasting lipid profile was conducted while the participant/subject was on anti-lipid therapy

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06264 Bladder function bladder capacity value

Value of the bladder capacity of participant/subject during cystometry

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06110 Pneumonia episode treat antibiotic past year number

Number of pneumonia episodes treated with antibiotics occurring after the spinal cord lesion and within the last year

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18142 Bowel care initiation stool out past three months average indicator

Indicator for whether the bowel care to stool coming out average time was not applicable or unknown

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18785 Gastrointestinal anal sphincter dysfunction unrelate SCI specify text

The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C18134 Cystogram result type

The type as related to the cystrogram result

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06194 Bowel function medication constipating agent type

Type of medication affecting bowel function / constipating agents

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06426 Spinal cord injury type

The mechanism of spinal cord injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C18152 Specify other disorder text

The free-text field to specify other disorder

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06322 SCI Classification sensory zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06063 Pain onset date

Date (and time, if applicable and known) the particular pain problem started

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C06126 Kidney right excretory function measurement

The percentage of excretory function for the right kidney. The combined excretory function for the two kidneys is 100 %

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06119 Ventilatory assistance type utilized during evaluation indicator

Indicator of whether the assistance device was utilized at the time of evaluation to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 401 - 425 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.