CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1731-C06072	C06072	Pain interfere sleep scale	Scale that evaluates to what extent pain has interfered with the participant's sleep	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06455	C06455	Musculoskeletal challenge interfere activity scale	Scale for how the musculoskeletal challenges interfere with the participant's daily activities of daily livings including transfers, walking, dressing, and showers	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06063	C06063	Pain onset date	Date (and time, if applicable and known) the particular pain problem started	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06003	C06003	Injury associate spinal cord injury indicator	Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06309	C06309	Sexual issue discussion willingness indicator	Indicator of the participant's willingness to discuss sexual issues	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06218	C06218	Perianal pain defecation frequency	The frequency of any perianal pain during defecation within the last three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18786	C18786	Defecation method bowel care procedure used past four week main other text	The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06309	C06309	Sexual issue discussion willingness indicator	Indicator of the participant's willingness to discuss sexual issues	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06377	C06377	Skin thermoregulation pressure ulcer surgically treat indicator	Indicator of whether the ulcer has been surgically treated. Surgical treatment may include any treatment ranging from small debridement of the surface of the ulcer to rotation flaps	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06411	C06411	Inpatient final discharge date and time	Date (and time, if applicable and known) of discharge from the last inpatient hospital when all planned acute care and rehabilitation phases of treatment are completed	Supplemental	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06230	C06230	Bowel care facilitators other text	The text of maneuver used to facilitate bowel care	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53029	C53029	Defecation uneasiness headache perspiration past four week indicator	The indicator related to uneasiness, headache or perspiration during defecation	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06467	C06467	Non traumatic spinal cord injury axis 2 ICD version number	ICD version used to classify the etiology of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06409	C06409	Skin thermoregulation pressure ulcer past year indicator	Indicator of the presence of a pressure ulcer during the last 12 months	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06241	C06241	Anal tone examination result	The result of digital examination of anal tone.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18785	C18785	Gastrointestinal anal sphincter dysfunction unrelate SCI specify text	The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C06426	C06426	Spinal cord injury type	The mechanism of spinal cord injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06063	C06063	Pain onset date	Date (and time, if applicable and known) the particular pain problem started	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06021	C06021	Urinary incontinence collect appliance type	Type or types of collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.