CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1725-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C04809	C04809	Hospital discharge destination type	Type of destination on completion of stabilization/evaluation in hospital	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C21646	C21646	Orthosis crutches type	Type of crutches the participant/subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19465	C19465	SCI chronic finding type	Type of chronic finding for spinal cord injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21623	C21623	Vehicular protective device safety restraint type	Type of child safety restraint used in the vehicle	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09706	C09706	Food Frequency Questionnaire - (FFQ)-cheese type indicator	Type of cheese the subject usually eats, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2070-C21650	C21650	Orthosis cane type	Type of cane the participant/subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19449	C19449	Spine canal cord location type	Type of canal/cord location	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06260	C06260	Bladder function bladder compliance type	Type of bladder compliance of the participant/subject during filling cystometry	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06260	C06260	Bladder function bladder compliance type	Type of bladder compliance of the participant/subject during filling cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21639	C21639	Fall details assistive device type	Type of assistive device(s) the participant/subject was using when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06112	C06112	Ventilatory assistance type	Type of assistance device utilized to augment ventilation	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C18195	C18195	Ankle foot orthosis type	Type of ankle-foot orthosis the participant/subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19461	C19461	Acute spinal cord injury feature type	Type of acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02300	C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02302	C02302	Adverse event other action taken type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C19257	C19257	Residence area type	Type describing the participant's/subject's current location of residence	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0364-C07447	C07447	Satisfaction with Life Scale (SWLS )- Total score	Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS)	Supplemental	Satisfaction with Life Scale	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F0826-C06329	C06329	SCI Classification light touch total score	Total score of sensation of light touch on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06329	C06329	SCI Classification light touch total score	Total score of sensation of light touch on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06320	C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 201 - 225 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.