CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19157 Primary care physician follow-up care indicator

Indicator for follow-up care from a primary care physician

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19137 Rehabilitation services received type

They type of rehabilitation services received

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19147 Therapy session average duration time

The average time duration of a therapy session

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C21633 Rehabilitation services received population type

They type of population (i.e., adult, pediatric) receiving rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19132 Ventilator assistance utilization indicator

Indicator for the utilization of ventilator assistance on discharge

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19133 Vital status type

The type of vital status held by the patient on discharge

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19135 Days hospitalized count

Total number of days hospitalized

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19127 Facility name

Name of facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C21657 Rehabilitation facility type

The type of rehabilitation facility to which the participant was discharged

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19129 Facility arrival time

Time at which patient arrived at facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C15927 Quantitative sensory testing increase stimulation rate value

Rate of increase of stimulation used during testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19314 Quantitative sensory testing threshold value

The threshold value for the indicated trial number for the sensation and threshold types selected in Quantitative Sensory Testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C15928 Quantitative sensory testing decrease stimulation rate value

Rate of decrease of stimulation used during testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19030 Quantitative sensory testing test methodology other text

The free-text field related to 'Quantitative sensory testing test methodology type' specifying other text. Type of methodology used for QST imaging

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C15931 Quantitative sensory testing vibration electrical stimuli frequency value

Frequency of vibration or electrical stimuli used during testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.