CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19120 Upper extremity surgery left osteotomy fingers/thumb performed indicator

The indicator for the surgical procedure of the restoration of the left fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19088 Open reduction indicator

Indicator for open reduction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19096 Surgery performed date

Date of last surgical intervention

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19104 Upper extremity surgery left soft tissue tendon wrist performed indicator

The indicator for the surgical procedure of the left tendon for wrist extension in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19112 Upper extremity surgery left osteotomy humerus performed indicator

The indicator for the surgical procedure of the restoration of the left humerus in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19121 Upper extremity surgery right implantable FES performed indicator

The indicator for surgical procedure on the right side with an Implantable FES

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19080 Spinal intervention surgical procedure performance nonparticipating facility indicator

Indicates performance of a spinal intervention or a surgical procedure at a nonparticipating facility

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19089 Neural element direct decompression indicator

Indicator of direct decompression of neural elements

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19097 Scoliosis surgical treatment indicator

Indicator for surgical treatment of scoliosis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19105 Upper extremity surgery right soft tissue restoration pinch performed indicator

The indicator for the surgical procedure of the restoration of right pinch and/or grasp in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19113 Upper extremity surgery right osteotomy radius performed indicator

The indicator for the surgical procedure of the restoration of the right radius in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C05104 Inpatient outpatient status

Status describing whether the participant/subject was admitted to the hospital and stayed overnight

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD)

 Supplemental Substance Use False Spinal Cord Injury Spinal Cord Injury
C22777 Illicit drug indicator

Indicator of subject's use of illicit or non-prescription drugs

 Supplemental Substance Use False Spinal Cord Injury Spinal Cord Injury
C22778 Illicit drugs used type

Illicit or non-prescription drugs used by the subject

 Supplemental Substance Use False Spinal Cord Injury Spinal Cord Injury
C08510 36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score

Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08518 36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator

Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08511 36-item Short Form Health Survey (SF-36) - Health limited walking one block score

Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08527 36-item Short Form Health Survey (SF-36) - Times energy score

Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.