CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1717-C19340	C19340	Mean arterial pressure measurement value	Result of a mean average pressure determination, expressed as a numeric value in millimeters of mercury (mmHg) to the nearest even number. The average pressure on the arteries from the beginning of one heartbeat to the beginning of the next heartbeat. Formally, it is the product of the cardiac output and the systemic vascular resistance, plus the central venous pressure	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06260	C06260	Bladder function bladder compliance type	Type of bladder compliance of the participant/subject during filling cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18123	C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06145	C06145	Vesicouretic reflux laterality type	The laterality type related to reflux to the ureter observed at the right and/or the left side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06161	C06161	Bladder neck during voiding status	Status of the bladder neck during voiding	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19341	C19341	Laboratory procedure creatinine clearance result value	Quantitative results of the laboratory test for creatinine clearance in mL/(min * 1.73 m?)	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06261	C06261	Bladder function urethral function type	Type of urethral function of the participant/subject during voiding	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06147	C06147	Bladder diverticulum indicator	Indicator of whether there is bladder diverticulum. This means diverticula of any size within the bladder or bladder neck were found	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06163	C06163	Striated urethral sphincter during voiding status	Status of the striated urethral sphincter during voiding	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06262	C06262	Bladder function detrusor leak point pressure value	Value of the lowest detrusor pressure on the participant/subject at which urine leakage occurs	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18130	C18130	Renography urinary tract other finding text	The free-text field for other findings from the urinary tract renography study	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06149	C06149	Bladder neck rest status	Bladder neck is evaluated to be either open or closed at rest	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06243	C06243	Gastrointestinal colonic transit time measurement	The total gastrointestinal or colonic transit time assessed by means of radioopaque markers and measured in hours.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06263	C06263	Bladder function detrusor maximum pressure value	Value of the maximum detrusor pressure on the participant/subject during filling cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18133	C18133	Cystogram performed date	Date Cystogram was performed	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06115	C06115	Force vital capacity measurement	Forced vital capacity (FVC) value measured in liters using simple spirometry. FVC is defined as the total volume of air that a person can forcibly exhale during a maximal expiratory effort	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.