CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18797 Sexual problem unrelate spinal cord lesion specify text

The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C22240 Laboratory procedure N telopeptide urine value

Value of N telopeptide urine taken from laboratory procedure

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06112 Ventilatory assistance type

Type of assistance device utilized to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C53037 Fecal incontinence past four week average frequency

Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19351 Quantitative sensory testing pinprick assessment result

Result for the assessment of pinprick sensation in thermal quantitative sensory testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C18144 Bowel care time stool pass care past three months average indicator

Indicator for whether the average time spent waiting for the last stool passes before ending bowel care is not applicable or unknown

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C12732 Needle electromyography motor unit action potential duration

The duration of the motor unit action potential during needle electromyography

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19452 Spine sagittal canal diameter injury measurement

Measurement of sagittal canal diameter injury

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C07081 Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score

Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C21656 Orthosis other type

Other types of orthoses used by the participant/subject

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06363 Serum lipid anti lipid therapy indicator

Indicates whether a fasting lipid profile was conducted while the participant/subject was on anti-lipid therapy

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19469 Brain Motor Control Assessment (BMCA) - Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C19156 General rehabilitation center follow-up care indicator

Indicator for follow-up care from a general rehabilitation center

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C17795 Imaging diffusion third b value

Value, in square millimeters per second, of the third b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C19487 Relationship family contact count

The number of family members in contact with

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18163 Gonadal disease specify name

Specifies the name of gonadal disease

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22269 Dual X-ray absorptiometry proximal tibia bone mineral density value

The value related to bone mineral density (BMD) found in the proximal tibia through dual X-ray absorptiometry (DEXA)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C18779 Urinary tract impairment unrelate injury specify text

The free-text field related to 'Urinary tract impairment unrelate injury indicator'. Indicator of urinary tract impairment unrelated to spinal cord lesion

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19460 Spine canal cord measurement not applicable indicator

Indicator for not applicable response

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C07089 Alcohol Use Disorders Identification Test (AUDIT) - Relative friend doctor concern indicator score

Score for the indicator of whether a relative, friend, doctor, or other health care workers has been concerned about the subject's drinking or suggested the subject cut down, as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
Displaying 201 - 225 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.