CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1801 - 1825 of 1886

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2075-C09801	C09801	Food Frequency Questionnaire - (FFQ)-crackers regular low fat indicator	Average total amount of regular or low fat crackers the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2118-C17229	C17229	Swallowing Disturbance Questionnaire (SwDQ) - chew food dribble from mouth score	Score for how frequent the participant/subject chews up food dribble from the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2589-C20385	C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09761	C09761	Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator	Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C18680	C18680	Food Frequency Questionnaire - (FFQ)-specific brand other text	The free-text field related to 'Food Frequency Questionnaire - (FFQ)-specific brand type' specifying other text. Specific brand of multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1737-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Exploratory	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06010	C06010	ASIA Impairment Scale	Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06330	C06330	SCI Classification sensory zone of partial preservation left result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the left side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06322	C06322	SCI Classification sensory zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06335	C06335	SCI Classification pin prick total score	Total score of a pin prick on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06420	C06420	SCI Classification motor strength lower limb single side score	Score of motor strength for the lower limb on the specific side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C22645	C22645	Spinal cord injury non traumatic etiology type	Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06387	C06387	SCI Classification anal contraction voluntary indicator	Indicator of whether or not the patient can have a voluntary anal contraction	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06320	C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06331	C06331	SCI Classification pin prick anatomic site grade	Grade of the ability to sense a pin prick on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06323	C06323	SCI Classification motor zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06336	C06336	SCI Classification motor zone of partial preservation left result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the left side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06421	C06421	SCI Classification light touch single side score	Score of sensation of light touch for the specific side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06410	C06410	SCI Classification S4-S5 sensory function result	Result of the extent to which motor or sensory function is preserved in the sacral segments S4-S5	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1801 - 1825 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.