CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06103 Tobacco smoke quit date

Date (and time, if applicable and known) the participant/subject quit smoking

Supplemental Alcohol and Tobacco Use Spinal Cord Injury Spinal Cord Injury
C05457 Hypoxic episode indicator

Indicator of hypoxic episode. Hypoxic episode is defined as partial pressure of oxygen in the blood (paO2)

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C19113 Upper extremity surgery right osteotomy radius performed indicator

The indicator for the surgical procedure of the restoration of the right radius in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06454 Musculoskeletal other problem text

Text describing the presence of any other musculoskeletal problems not described elsewhere

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C19346 Sensory evoked potential heat average scale

The average numeric value related to assessing somatosensory system functioning with heat

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C12728 Needle electromyography electrode type

Type of electrode used for the needle electromyography

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19394 Spine degenerative feature type

The type related to degenerative feature of spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C21652 Elbow wrist orthosis type

Type of elbow or wrist orthosis the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C22815 Injury level pinprick hyperalgesia intensity scale

The scale related to intensity if hyperalgesia for pinprick at the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06262 Bladder function detrusor leak point pressure value

Value of the lowest detrusor pressure on the participant/subject at which urine leakage occurs

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C15933 Quantitative sensory testing stimulus rest period duration unit of measure

The units used to measure duration between stimulus rest periods

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C06361 Gonadal male status

Stage of gonadal development/senescence for males

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19149 Setting type

The type of setting

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C22312 Laboratory procedure thyroid function thyroid antibodies status

The status related to thyroid antibodies

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C19483 Volunteer work hour week count

The number of hours per week in volunteer work

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06014 Bladder empty need awareness indicator

Indicator of whether the participant is aware that he/she needs to empty his/her bladder

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06244 Colonic transit right side measurement

The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS)

Supplemental Satisfaction with Life Scale Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.