CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06073 Pain treatment indicator

Indicator for whether the participant is using or receiving any treatment for the pain experienced

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C18784 Ventilatory assistance other text

The free-text field related to 'Ventilatory assistance type' specifying other text. Type of assistance device utilized to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Other Investigational Treatments Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C22285 Thyroid disease prior thyroiditis diagnosis date

Date when prior thyroiditis disease was diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06009 SCI Classification motor neurological level right result

Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C19474 Spine length integer range value

Value on the integer range of spine length in millimeters

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C21658 Electrodiagnostic exam date

The date of the electrodiagnostic exam testing

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19371 Imaging pre-existing hardware surgery lower limit instrumentation anatomic site

The lower limit instrumentation anatomic site for pre-existing hardware surgeries

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19163 Acute care unit admission time

The time at which participant was admitted to acute care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06199 Perianal problem experienced last year indicator

Indicator of whether the perianal problem was experienced within the last year

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06145 Vesicouretic reflux laterality type

The laterality type related to reflux to the ureter observed at the right and/or the left side

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06062 Pain intensity average past week scale

Scale of the participant's/subject's pain intensity in the past week. A 0 - 10 Numerical Rating Scale (ranging from 0 = "No pain" to a maximum of 10 = "Pain as bad as you can imagine") of average pain intensity for the past week

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06149 Bladder neck rest status

Bladder neck is evaluated to be either open or closed at rest

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C17414 Urinary tract infection symptom type

Type of sign(s)/symptom(s) associated with a bacterial infectious process affecting any part of the urinary tract, most commonly the bladder and the urethra

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22300 Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value

The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C06219 Flatus incontinence frequency

The frequency of flatus incontinence within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19724 Laboratory procedure fasting glucose measurement

Measurement of the amount of glucose in the participant's blood when fasting

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.