CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1870
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Exam Spinal Cord Injury Spinal Cord Injury
C18786 Defecation method bowel care procedure used past four week main other text

The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C06460 Non traumatic spinal cord injury etiology classification axis 1 level 1 category

The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C19377 Spine subluxation translation level anatomic site

The anatomic site level as related to subluxation or translation of spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C06158 Ureter stone laterality type

The laterality type related to stone present in the ureter. This means urinary stone(s) was/were found in the ureter on either side

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06378 Skin thermoregulation pressure ulcer last surgically treat date

Date the pressure ulcer was last surgically treated

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19162 Acute care unit admission date

The date at which participant was admitted to acute care unit

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C22306 Laboratory procedure thyroid function triiodothyronine resin uptake serum value

The value related to triiodothyronine (T3) resin uptake in serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06219 Flatus incontinence frequency

The frequency of flatus incontinence within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19348 Cardiovascular history other text

The free-text field related to "Cardiovascular history condition type" specifying other text

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C22177 Laboratory procedure carbohydrate metabolism collected date

Date (and time if applicable and known) when the specimen was collected

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C02437 Imaging modality type

Type of radiologic study performed on the participant/subject

Supplemental Imaging Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06412 Injury vertebral indicator

Whether there was a spinal fracture and/or dislocation in addition to the spinal cord injury. Spinal fracture or dislocation is defined as any break, rupture, or crack through or between any part(s) of the vertebral column from the occiput to the coccyx

Supplemental International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C22820 Injury level cold other text

Free-text field to indicate what other type of response the participant experiences from cold at the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C21646 Orthosis crutches type

Type of crutches the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19423 Brain Motor Control Assessment (BMCA) - Similarity index value

Value of similarity index recorded for the designated test as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1870

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.