CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1701 - 1725 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09789 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator-whole wheat oatmeal other whole grain bread indicator

Average total amount of whole wheat, oatmeal, or other whole grain bread the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C18146 Laboratory procedure HDL cholesterol measurement

Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09672 Food Frequency Questionnaire - (FFQ)-selenium indicator

Selenium indicator, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09797 Food Frequency Questionnaire - (FFQ)-pancakes waffles indicator

Average total amount of pancakes or waffles the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19469 Brain Motor Control Assessment (BMCA) - Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09757 Food Frequency Questionnaire - (FFQ)-peppers indicator

Average total amount of peppers: green, yellow, or red the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C18779 Urinary tract impairment unrelate injury specify text

The free-text field related to 'Urinary tract impairment unrelate injury indicator'. Indicator of urinary tract impairment unrelated to spinal cord lesion

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C08508 36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score

Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09805 Food Frequency Questionnaire - (FFQ)-carbonated beverage caffeine sugar indicator

Average total amount of carbonated beverage with caffeine and sugar the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17233 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score

Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09765 Food Frequency Questionnaire - (FFQ)-other chicken turkey skin indicator

Average total amount of other chicken or turkey, with skin the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19178 Pre spinal cord lesion pulmonary condition other text

The free-text field related to "Pre spinal cord lesion pulmonary condition type" specifying other text. Type of pulmonary conditions present before spinal cord lesion

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C08516 36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator

Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09813 Food Frequency Questionnaire - (FFQ)-bottled water sparkling tap indicator

Average total amount of bottled, sparkling, or tap water the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09648 Food Frequency Questionnaire - (FFQ)-current multi-vitamins indicator

Subjects current multi-vitamins taken, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C11907 Modified Ashworth Scale for Grading Spasticity muscle tested name

Name of Muscle Tested

 Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09773 Food Frequency Questionnaire - (FFQ)-beef pork lamb sandwich mixed dish indicator

Average total amount of beef, pork, or lamb as a sandwich or mixed dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19279 Citizen country indicator

The indicator for whether participant is a citizen of country

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C19207 Congenital deformity surgery date

The date of surgery on congenital deformity of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19400 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count

Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09735 Food Frequency Questionnaire - (FFQ)-salsa picante taco sauce indicator

Average total amount of salsa, picante or taco sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09860 Food Frequency Questionnaire - (FFQ)-olive oil added food indicator

Average total amount for olive oil the subject added to food or bread this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09695 Food Frequency Questionnaire - (FFQ)-soy milk consume total amount value

Average total amount of soy milk the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C22779 Vasopressor use date

Date (and time, if applicable) when the vasopressor was administered

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
Displaying 1701 - 1725 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.