CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0832-C06409	C06409	Skin thermoregulation pressure ulcer past year indicator	Indicator of the presence of a pressure ulcer during the last 12 months	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06241	C06241	Anal tone examination result	The result of digital examination of anal tone.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0364-C07442	C07442	Satisfaction with Life Scale (SWLS) - Life close ideal score	Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS)	Supplemental	Satisfaction with Life Scale	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22817	C22817	Injury below level pinprick other text	Free-text field to indicate what other type of response the participant experiences from pinprick below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C19067	C19067	Other mobility device other text	The free-text field related to 'Other mobility device type' specifying other text. Type of other mobility device that the participant/ subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21627	C21627	Hospital transport board mattress pad indicator	Indicates whether the hospital transport board was modified with a double matress pad	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19316	C19316	Dermatome area name	Name of dermatome area	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22316	C22316	Laboratory procedure adrenal function 24 hour cortisol urine value	The value related to concentration of cortisol tested in the urine over 24 hours	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19098	C19098	Surgery scoliosis performed date	Date of surgical treatment of scoliosis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C21658	C21658	Electrodiagnostic exam date	The date of the electrodiagnostic exam testing	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C05452	C05452	Spinal injury anatomic site	Anatomic site(s) of the spine injury represented as level(s) of the spinal-injured vertebrae	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06021	C06021	Urinary incontinence collect appliance type	Type or types of collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18791	C18791	Bowel care position past three months other text	The free-text field related to 'Bowel care position past three months type' specifying other text. The indicator of whether the bowel care position was used within the past three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07082	C07082	Alcohol Use Disorders Identification Test (AUDIT) - More than 6 alcohol drink frequency score	Score for the frequency with which the subject consumes six or more alcoholic drinks on a single occasion, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22825	C22825	Pain past treatment physiotherapy type	The type of past physiotherapy treatment the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19404	C19404	Brain Motor Control Assessment (BMCA) - Repeatability over three trials result	Repeatability of response occurring over three trials as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22332	C22332	Laboratory procedure anterior pituitary function prolactin plasma value	The value related to concentration of prolactin in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01022	C01022	Pediatric Glasgow Coma Scale (PGCS) - verbal response score	Score for the participant's verbal response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19106	C19106	Upper extremity surgery left soft tissue restoration pinch performed indicator	The indicator for the surgical procedure of the restoration of left pinch and/or grasp in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 151 - 175 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.