CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1888

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1708-C19479	C19479	Spinal cord injury mobility moderate distance status	The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22308	C22308	Laboratory procedure thyroid function free thyroxine plasma serum value	The value related to concentration of free thyroxine (FT4) in the plasma/serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18790	C18790	Perianal problem other text	The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06253	C06253	Heart rate status	Findings after taking a participant's pulse during the examination	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06163	C06163	Striated urethral sphincter during voiding status	Status of the striated urethral sphincter during voiding	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06126	C06126	Kidney right excretory function measurement	The percentage of excretory function for the right kidney. The combined excretory function for the two kidneys is 100 %	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19130	C19130	Facility discharge date	Date when patient was discharged from facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19426	C19426	Brain Motor Control Assessment (BMCA) - Fast as possible antagonist burst presence indicator	Indicator for the presence of an antagonist burst in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C21647	C21647	Hand preference pre-injury type	Hand which the participant/subject used predominantly, not necessarily the hand he/she wrote with exclusively prior to injury	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C19144	C19144	Activity description	Description of activity	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19101	C19101	Upper extremity surgery right soft tissue reconstruction tendon elbow performed indicator	The indicator for the surgical procedure of the right tendon for elbow extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C19369	C19369	Electrophysiology motor nerve F-wave persistence percentage value	The percentage of measurable F responses following a series of stimuli that is related to the antidromic excitability of a particular motor neuron pool	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1708-C19487	C19487	Relationship family contact count	The number of family members in contact with	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22329	C22329	Laboratory procedure gonadal function bioactive testosterone serum value	The value related to concentration of bioactive testosterone in serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C58644	C58644	Diaper pad plug use past three month frequency category	Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22233	C22233	Laboratory procedure parathyroid hormone plasma value	This variable documents the level of parathyroid gland function	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 151 - 175 of 1888

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.