CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0829-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22842	C22842	Pain current treatment side effect adverse event text	Free-text field to specify side effects or adverse events the participant is currently receiving	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14643	C14643	Functional Disability Inventory (FDI) - child form friend activity scale	The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2303-C22802	C22802	Pain worst intensity past week scale	Scale for the worst pain intensity in the past week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06313	C06313	Psychogenic genital arousal scale	Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06264	C06264	Bladder function bladder capacity value	Value of the bladder capacity of participant/subject during cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21626	C21626	Hospital transport board cut-out indicator	Indicates whether the hospital transport board was modified with a cut-out	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C06363	C06363	Serum lipid anti lipid therapy indicator	Indicates whether a fasting lipid profile was conducted while the participant/subject was on anti-lipid therapy	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19256	C19256	Study protocol name	Name of study protocol	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06236	C06236	Stool defecation assistance past three months average duration	The average time duration in minutes during bowel movement that stool intermittently or continuously (in the case of a single defecation) comes out with or without assistance within the last three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19485	C19485	Education study hour week count	The number of hours per week in educational study	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19097	C19097	Scoliosis surgical treatment indicator	Indicator for surgical treatment of scoliosis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06110	C06110	Pneumonia episode treat antibiotic past year number	Number of pneumonia episodes treated with antibiotics occurring after the spinal cord lesion and within the last year	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19243	C19243	Sensory latency value	The value of latency in sensory response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C06190	C06190	Defecation past four week average duration range	Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14651	C14651	Functional Disability Inventory (FDI) - child form watch TV scale	The scale of the child's or adolescent's ability to watch television when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2303-C22810	C22810	Injury below level dynamic light touch response type	The type of response related to dynamic light touch below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12688	C12688	Orthosis knee ankle foot orthosis ischial weight bearing indicator	Indicator whether any knee-ankle-foot orthosis (KAFO) currently used by the participant/subject is ischial weight bearing	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 151 - 175 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.