CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1870
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06230 Bowel care facilitators other text

The text of maneuver used to facilitate bowel care

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22285 Thyroid disease prior thyroiditis diagnosis date

Date when prior thyroiditis disease was diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06009 SCI Classification motor neurological level right result

Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C05452 Spinal injury anatomic site

Anatomic site(s) of the spine injury represented as level(s) of the spinal-injured vertebrae

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19185 Urinary tract drug use other text

The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19331 Imaging number of excitations count

The count as related to number of diffusion tensor imaging acquisitions or number of excitations

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C06318 Reflex erection scale

A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C06241 Anal tone examination result

The result of digital examination of anal tone.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22300 Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value

The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18188 Other mobility device type

Type of other mobility device that the participant/ subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C06440 Fragility fracture indicator

Indicator of whether the fracture is a fragility fracture. Fragility fractures result from low force injuries insufficient to fracture normal bone

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19724 Laboratory procedure fasting glucose value

Subject/Participant's amount of fasting glucose in the blood

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19338 Electrophysiology test coil location text

Text articulating the location of coil in electrophysiology test

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C06431 Spinal injury traumatic translation indicator

For each of the spinal column injury level(s) whether there was any traumatic translation (occiput to sacrum). Translation is defined as sagittal and/or coronal plane mal-alignment of adjacent vertebra as seen on lateral and/or AP radiographs respectively; it consists of movement of 3.5 mm or more of one cervical vertebra on top of the adjacent vertebra or movement of 2.5 mm or more of one thoracic and lumbar vertebra on top of the adjacent vertebra1 (on available imaging)

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18791 Bowel care position past three months other text

The free-text field related to 'Bowel care position past three months type' specifying other text. The indicator of whether the bowel care position was used within the past three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C21648 Walker wheel number

Designates the number of wheels the walker has that the participant/subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C06314 Reflex genital arousal scale

Scale for how the female's reflex genital arousal is affected by the spinal cord injury

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06455 Musculoskeletal challenge interfere activity scale

Scale for how the musculoskeletal challenges interfere with the participant's daily activities of daily livings including transfers, walking, dressing, and showers

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22193 Laboratory procedure calcium plasma ionized value

This variable documents abnormality in circulating ionized calcium level

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19189 Oral laxative tablets capsules granulates other text

The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1870

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.