CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06003 Injury associate spinal cord injury indicator

Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19491 Spinal cord injury upper extremity reach grasp basic assessment status

The status of the ability to reach and grasp as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06195 Constipating agent fecal incontinence drug last four week indicator

Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14654 Functional Disability Inventory (FDI) - child form shopping scale

The scale of the child's or adolescent's ability to go shopping when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C22813 Injury level pinprick response type

The type of response related to pinprick at the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18188 Other mobility device type

Type of other mobility device that the participant/ subject uses

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19406 Brain Motor Control Assessment (BMCA) - Magnitude average value

Average magnitude value over all trials as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C22306 Laboratory procedure thyroid function triiodothyronine resin uptake serum value

The value related to triiodothyronine (T3) resin uptake in serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06260 Bladder function bladder compliance type

Type of bladder compliance of the participant/subject during filling cystometry

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C05433 Protective devices use indicator

Indicator of protective devices used by participant/subject (e.g., helmet, car seat, seat belt, etc.)

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19108 Upper extremity surgery left soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of left tendon/muscle releases or lengthenings in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C00024 Language primary ISO code

Code (ISO 639-2) for the language the participant/subject speaks most often

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C06448 Spasticity spasm treat last four week indicator

Indicator of whether the person with SCI has received any kind of treatment for spasticity/spasms within the last four weeks

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06249 Cardiovascular function after last three month type

Types of cardiovascular function that may have occurred after the spinal cord lesion (within three months)

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22821 Injury level cold allodynia intensity scale

The scale related to intensity if allodynia for cold at the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 101 - 125 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.