CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1870
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C12629 Neonatal intensive care unit stay duration

Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)

 Supplemental-Highly Recommended Birth Injuries False Spinal Cord Injury Spinal Cord Injury
C14697 Berg Balance Scale (BBS) - transfer scale

The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental-Highly Recommended Berg Balance Scale (BBS) False Spinal Cord Injury Spinal Cord Injury
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental-Highly Recommended Berg Balance Scale (BBS) False Spinal Cord Injury Spinal Cord Injury
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Spinal Cord Injury Spinal Cord Injury
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Birth Injuries False Spinal Cord Injury Spinal Cord Injury
C19343 Sensory evoked potential stimulation spine anatomic site

The anatomic site in the spine related to assessing somatosensory system functioning

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19391 Spine degenerative feature indicator

Indicator for developmental feature in spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C06259 Bladder function detrusor function type

Type of magnitude of the detrusor function on the participant/subject

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C15928 Quantitative sensory testing decrease stimulation rate value

Rate of decrease of stimulation used during testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C06358 Diabetes mellitus type

Type of diabetes mellitus

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19146 Activity frequency other text

The free text field related to "Activity frequency" specifying other text. The frequency of the activity

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C19480 Spinal cord injury dressing lower body status

The status related to spinal cord injur and dressing lower body

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06105 Pulmonary complication or condition after spinal cord lesion last year indicator

Indicator of whether the specific pulmonary complication or condition occurred after the spinal cord lesion and within the last year

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C06239 Constipation lifestyle alteration past three months scale

The scale that assesses lifestyle alteration due to constipation within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22242 Laboratory procedure C telopeptide plasma serum value

Value of C telopeptide plasma serum gathered within the laboratory procedure

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C53041 Flatus incontinence indicator

The indicator related to flatus incontinence within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19352 Quantitative sensory testing light touch assessment result

Result for assessment of light touch sensation in quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12733 Needle electromyography motor unit action potential complexity percent value

The complexity of the motor unit action potential measured during needle electromyography

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19453 Spine sagittal canal diameter caudal injury measurement

Measurement of sagittal canal diameter caudal to injury

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C06413 Spinal surgery indicator

Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column

 Supplemental International SCI Core Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 101 - 125 of 1870

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.