CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 101 - 125 of 1886

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2068-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19493	C19493	Spinal cord injury upper extremity assistive device use frequency value	The frequency of use of assistive devices for upper extremity in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06063	C06063	Pain onset date	Date (and time, if applicable and known) the particular pain problem started	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19501	C19501	Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text	The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19494	C19494	Spinal cord injury upper extremity function complications status	The status of complications to upper extremity function like pain, spasms, contractures, edema, etc	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06122	C06122	Renography radioactive isotope type	Type of radioactive isotope used to perform the renography	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22823	C22823	Injury below level cold other text	Free-text field to indicate what other type of response the participant experiences from cold below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19486	C19486	Leisure activity hour week count	The number of hours per week of spare time activities	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C06146	C06146	Spinal cord injury psychological health satisfaction scale	Numeric response of psychological health emotions and mood of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19426	C19426	Brain Motor Control Assessment (BMCA) - Fast as possible antagonist burst presence indicator	Indicator for the presence of an antagonist burst in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22330	C22330	Laboratory procedure gonadal function free testosterone serum value	The value related to concentration of free testosterone in serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C19502	C19502	Tobacco cigarettes smoke daily average value	Tobacco cigarettes smoked daily average number	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19088	C19088	Open reduction indicator	Indicator for open reduction	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C58641	C58641	Cardiovascular disease family history type text	Text field for indicating the type(s) of cardiovascular disease of which there is a history in the subject/participant's family	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C18765	C18765	Surgical or therapeutic procedure other text	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18136	C18136	Void cystogram results type	Results of voiding cystogram performed on the urinary tract	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06154	C06154	Stasis dilation upper urinary tract laterality type	The laterality type related to stasis/ dilatation in upper urinary tract. This means stasis or dilatation was found of the renal pelvis (hydronephrosis) and/or ureter (hydroureteris) on either side	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22831	C22831	Pain past treatment oral topical medication type	The type of past oral and topical medication the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 101 - 125 of 1886

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.