CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58644 Diaper pad plug use past three month frequency category

Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18168 Laboratory procedure total cholesterol measurement

Measurement of the total amount of cholesterol in the participant's blood

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C18127 Xray urinary tract other finding text

Free-text field to specify other findings from the urinary tract X-ray study

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C14645 Functional Disability Inventory (FDI) - child form eat meal scale

The scale of the child's or adolescent's ability to eat regular meals when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C12679 Mobility device use indicator

Whether the participant/subject uses a mobility device (e.g., wheelchair)

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C21628 Pediatric Glasgow coma scale date and time

Date (and time, if known) of Pediatric Glasgow Coma Scale assessment

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

 Supplemental Electrical Perceptual Thresholds False Spinal Cord Injury Spinal Cord Injury
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19099 Upper extremity/hand reconstructive surgery indicator

Indicator for surgery on upper extremity/hand

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19380 Spine angulation level anatomic site

The anatomic site level of angulation in spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19169 Special care unit discharge date

Date at which participant was discharged from special care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C06152 Imaging study urinary tract global result type

The type of results related to urinary tract from imaging of two kidneys

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06072 Pain interfere sleep scale

Scale that evaluates to what extent pain has interfered with the participant's sleep

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C17418 Urine dipstick test leukocyte esterase status

Status of leukocyte esterase presence in urine dipstick test which indicates the presence of white blood cells in a urine sample

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06146 Spinal cord injury psychological health satisfaction scale

Numeric response of psychological health emotions and mood of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06309 Sexual issue discussion willingness indicator

Indicator of the participant's willingness to discuss sexual issues

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C06223 Bowel care position text

The text of position assumed for bowel care

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 476 - 500 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.