CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1717-C19341	C19341	Laboratory procedure creatinine clearance result value	Quantitative results of the laboratory test for creatinine clearance in mL/(min * 1.73 m?)	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C19201	C19201	Pre spinal cord lesion endocrine metabolic condition diagnosed other text	The free text field related to "Pre spinal cord lesion endocrine metabolic condition diagnosed type" specifying the other text. Type of pre spinal cord lesion endocrine & metabolic condition	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14650	C14650	Functional Disability Inventory (FDI) - child form read homework scale	The scale of the child's or adolescent's ability to read or do homework when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2070-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19402	C19402	Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting muscle count	Number of muscles examined in long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01020	C01020	Pediatric Glasgow Coma Scale (PGCS) - eye response score	Score for the participant's eye response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19104	C19104	Upper extremity surgery left soft tissue tendon wrist performed indicator	The indicator for the surgical procedure of the left tendon for wrist extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22271	C22271	Dual X-ray absorptiometry radius bone mineral density value	The value related to bone mineral density (BMD) found in the radius through dual X-ray absorptiometry (DEXA)	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06436	C06436	Neuro-Musculoskeletal condition anatomic site	Anatomic site of the neuro-musculoskeletal condition experienced or diagnosed	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06429	C06429	Spinal column injury number	Number assigned to the spinal column injury. The spinal column injuries are assigned numbers starting with the most cephalic spinal column injury	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C19067	C19067	Other mobility device other text	The free-text field related to 'Other mobility device type' specifying other text. Type of other mobility device that the participant/ subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19416	C19416	Brain Motor Control Assessment (BMCA) - Response present indicator	Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05453	C05453	Hypotensive episode indicator	Indicator of hypotensive episode. In adults, hypotensive episode is defined as systolic blood pressure	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19112	C19112	Upper extremity surgery left osteotomy humerus performed indicator	The indicator for the surgical procedure of the restoration of the left humerus in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22284	C22284	Thyroid disease prior thyroiditis diagnosis type	The type related to prior thyroiditis diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06008	C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19083	C19083	Non-surgical bed rest external immobilization indicator	The indicator related to non-surgical bed rest and external immobilization	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.