CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 451 - 475 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18024 Temperature skin unit of measure

The units of measure for participant/subject's baseline skin temperature

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19468 Brain Motor Control Assessment (BMCA) - Laterality type

Laterality type relative to the anatomic site of the body examined or affected as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C06364 Endocrine metabolic history after spinal cord lesion within last year type

The type as related to the endocrine or metabolic complication or condition occurred after the spinal cord lesion and within the last year

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19155 Specialized SCI center follow-up care indicator

Indicator for follow-up care from a specialized SCI center

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19486 Leisure activity hour week count

The number of hours per week of spare time activities

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06111 Pneumonia episode require hospitalization past year number

Number of pneumonia episodes requiring hospitalization occurring after the spinal cord lesion and within the last year

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06019 Bladder average empty per day past week number

Average amount of voluntary bladder emptyings per day during the last week

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18143 Stool defecation assistance past three months average indicator

Indicator for whether the average time during bowel movement that stool intermittently or continuously comes out with or without assistance is not applicable or unknown

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22252 Dual X-ray absorptiometry distal femur bone mineral density value

The value related to bone mineral density (BMD) found in the distal femur through dual X-ray absorptiometry (DEXA)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C07080 Alcohol Use Disorders Identification Test (AUDIT) - Drink contain alcohol frequency score

Score for the frequency with which the subject consumes alcoholic drinks, as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C19459 Spine transverse cord diameter caudal measurement

Measurement of transverse cord diameter caudal

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C18136 Void cystogram results type

Results of voiding cystogram performed on the urinary tract

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C19313 Quantitative sensory testing average threshold value

The average threshold value over all trials for the sensation and threshold types selected in Quantitative Sensory Testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C18161 Adrenal disease specify name

Specifies the name of adrenal disease diagnosed

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06002 Inpatient treatment total day number

Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19331 Imaging number of excitations count

The count as related to number of diffusion tensor imaging acquisitions or number of excitations

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06070 Pain interfere daily activity scale

Scale that evaluates to what extent pain has interfered with the participant's daily activities

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C06293 Medical history condition type indicator

Indicator of whether the participant/subject has a history of the pre-specified medical condition/disease.

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Exam Spinal Cord Injury Spinal Cord Injury
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22281 Thyroid disease prior goiter diagnosis type

The type related to prior thyroid disease of goiter diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 451 - 475 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.