CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C22831 Pain past treatment oral topical medication type

The type of past oral and topical medication the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C22344 Laboratory procedure posterior pituitary function fluid deprivation desmopressin acetate test result

Result of the fluid deprivation test with DDAVP

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C10630 Diary day near falls experienced number

Number of near falls the participant/subject experienced on a particular day

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
C19167 Special care unit type

Type of special care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C06449 Heterotopic ossification detection method type

Type of method used to document the heterotopic ossification

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06149 Bladder neck rest status

Bladder neck is evaluated to be either open or closed at rest

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06250 Medication cardiovascular function exam day indicator

Indicator of whether the participant/subject took any medications affecting cardiovascular functions on the day of the examination.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C15544 Imaging stimulation intensity value

Stimulation intensity used on imaging

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19133 Vital status type

The type of vital status held by the patient on discharge

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C17416 Urinary tract infection symptom other text

Text field to specify a symptom (other than those pre-defined) associated with a bacterial infectious process affecting any part of the urinary tract, most commonly the bladder and the urethra

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19461 Acute spinal cord injury feature type

Type of acute spinal cord injury feature

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19106 Upper extremity surgery left soft tissue restoration pinch performed indicator

The indicator for the surgical procedure of the restoration of left pinch and/or grasp in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06293 Medical history condition type indicator

Indicator of whether the participant/subject has a history of the pre-specified medical condition/disease.

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19415 Brain Motor Control Assessment (BMCA) - Muscle movement type

Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C06317 Psychogenic erection scale

Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C06103 Tobacco smoke quit date

Date (and time, if applicable and known) the participant/subject quit smoking

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C05451 Injury Severity Score

Score measured by injury severity score (ISS)

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C06240 Bowel dysfunction impact life quality scale

The self report scale that describes impact on quality of life caused by neurogenic bowel dysfunction.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 401 - 425 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.