CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02437 Imaging modality type

Type of radiologic study performed on the participant

 Supplemental Imaging False Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19327 Sensory evoked potential side nerve dermatome description text

Text of description of sensory evoked potential side nerve dermatome

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C18024 Temperature skin unit of measure

The units of measure for participant/subject's baseline skin temperature

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19387 Spine traumatic herniated nucleus polposus type

Type of traumatic herniated nucleus polposus in the spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C21636 Fall details location text

Location of the fall the participant/subject experienced recorded in the Falls Diary

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
C06115 Force vital capacity measurement

Forced vital capacity (FVC) value measured in liters using simple spirometry. FVC is defined as the total volume of air that a person can forcibly exhale during a maximal expiratory effort

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C06111 Pneumonia episode require hospitalization past year number

Number of pneumonia episodes requiring hospitalization occurring after the spinal cord lesion and within the last year

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22332 Laboratory procedure anterior pituitary function prolactin plasma value

The value related to concentration of prolactin in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06460 Non traumatic spinal cord injury etiology classification axis 1 level 1 category

The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury

 Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22242 Laboratory procedure C telopeptide plasma serum value

Value of C telopeptide plasma serum gathered within the laboratory procedure

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18131 Clearance text

Clearance

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06378 Skin thermoregulation pressure ulcer last surgically treat date

Date the pressure ulcer was last surgically treated

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C14644 Functional Disability Inventory (FDI) - child form chore scale

The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C19347 Temperature average measurement value

Measurement of the participant's/subject's body average temperature

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C06149 Bladder neck rest status

Bladder neck is evaluated to be either open or closed at rest

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18152 Specify other disorder text

The free-text field to specify other disorder

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22832 Pain past treatment oral topical medication other text

Free-text field to indicate the type of oral and topical medication the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
Displaying 401 - 425 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.