CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 376 - 400 of 1888
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22247 Dual X-ray absorptiometry scan osteoporosis diagnosis anatomic site

This variable documents bone mineral density at skeletal sites of interest, including the distal femur, proximal tibia, total hip, femoral neck, and radius (at one-third site)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18134 Cystogram result type

The type as related to the cystrogram result

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06405 Hyperhidrosis past three months status

Status of whether the subject had hyperhidrosis after spinal cord lesion within the last three months. Hyperhidrosis is defined as excessive sweating above or below level of injury in the absence of increased ambient temperature

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14647 Functional Disability Inventory (FDI) - child form riding bus car scale

The scale of the child's or adolescent's ability to ride the bus to school or travel in a car when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06262 Bladder function detrusor leak point pressure value

Value of the lowest detrusor pressure on the participant/subject at which urine leakage occurs

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C12683 Mobility device type

Type for all mobility devices currently used by the participant/subject

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19261 Imaging magnetic resonance imaging quality result

Image quality of magnetic resonance image

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C22352 Laboratory procedure renin aldosterone function aldosterone supine serum value

The value related to concentration of serum aldosterone when participant/subject is supine

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C21628 Pediatric Glasgow coma scale date and time

Date (and time, if known) of Pediatric Glasgow Coma Scale assessment

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C58642 Cardiovascular disease family history type unknown indicator

Indicator of whether the type of cardiovascular disease of which the subject/participant's family has a history is unknown

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22277 Thyroid disease assessment date

Date when information was collected for prior thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C00025 Language primary text

Text for the language the participant/subject speaks most often

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19082 Interventionprocedure date

Date (and time if applicable and known) intervention/procedure was performed

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14655 Functional Disability Inventory (FDI) - child form sleep scale

The scale of the child's or adolescent's ability to sleep and stay asleep at night when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06265 Bladder function post void volume value

Value for the residual bladder volume of participant/subject after cystometry

Supplemental International SCI Urodynamic Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18130 Renography urinary tract other finding text

The free-text field for other findings from the urinary tract renography study

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
Displaying 376 - 400 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.