CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06107 Tobacco pipe bowl smoke daily average value

If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis

Supplemental Alcohol and Tobacco Use Spinal Cord Injury Spinal Cord Injury
C06003 Injury associate spinal cord injury indicator

Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19115 Upper extremity surgery right osteotomy ulnar performed indicator

The indicator for the surgical procedure of the restoration of the right ulnar in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C13485 Household member total count

The total number of members in the participant's household

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C18174 Pre-exist diagnosis location text

Text describing the diagnosis and location of the pre-existing neuro-musculoskeletal history of either the spin and spinal cord, degenerative spine disorders, or systemic neuro-degenerative disorders

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C06291 Medication affecting cardiovascular function type exam day indicator

Indicator of whether the participant/subject used the specific type of medication affecting cardiovascular functions on the day of the examination

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06354 Skin thermoregulation pressure ulcer anatomic site

Location on the body of the pressure ulcer

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06212 Bowel function SCI data constipation duration

The duration of participant's/subject's constipation.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22828 Pain past treatment passive stimulaiton therapy other text

Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18132 Cystogram code

Cystogram code

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C22339 Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value

The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C06056 Pain past seven day indicator

Indicator of the presence of any type of pain during the last 7 days, including today

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C14223 Emergency Medical Services (EMS) service highest level type

Highest level of emergency medical service (EMS) provided

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19123 Upper extremity surgery right other performed indicator

The indicator for other surgical procedure on the right side

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C02303 Adverse event outcome status

Final status of the participant/subject related to the adverse event

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C06460 Non traumatic spinal cord injury etiology classification axis 1 level 1 category

The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury

Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets Spinal Cord Injury Spinal Cord Injury
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19355 Thermal quantitative sensory testing decrease rate value

Rate of decrease in stimulation intensity for thermal quantitative sensory testing

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19082 Interventionprocedure date

Date (and time if applicable and known) intervention/procedure was performed

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.