CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19459 Spine transverse cord diameter caudal measurement

Measurement of transverse cord diameter caudal

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19331 Imaging number of excitations count

The count as related to number of diffusion tensor imaging acquisitions or number of excitations

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19100 Stabilization and fusion segment level

Level of stabilization and fusion segment in surgical procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06022 Urinary incontinence collect appliance type use indicator

Indicator of whether or not the type of collecting appliance for urinary incontinence was in use on the date of data collection

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22281 Thyroid disease prior goiter diagnosis type

The type related to prior thyroid disease of goiter diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C07083 Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score

Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C06265 Bladder function post void volume value

Value for the residual bladder volume of participant/subject after cystometry

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19470 Spine upper level anatomic site

Anatomic site on the upper level of the spinal cord

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19338 Electrophysiology test coil location text

Text articulating the location of coil in electrophysiology test

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19261 Imaging magnetic resonance imaging quality result

Image quality of magnetic resonance image

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C06221 Fecal incontinence solid stools frequency

The frequency of fecal incontinence to solid stools within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19108 Upper extremity surgery left soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of left tendon/muscle releases or lengthenings in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19184 Urinary tract drug use indicator

Indicator for urinary tract drugs used within the last year

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06195 Constipating agent fecal incontinence drug last four week indicator

Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06448 Spasticity spasm treat last four week indicator

Indicator of whether the person with SCI has received any kind of treatment for spasticity/spasms within the last four weeks

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22294 Thyroid disease prior diagnosis other date

Date when other thyroid disease was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.