CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0833-C06447	C06447	Spasticity spasm indicator	Indicator of the presence of spasticity/spasms	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06248	C06248	Cardiovascular event after spinal cord lesion date and time	Date (and time, if applicable and known) on which the cardiovascular event occurred after the spinal cord lesion.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06187	C06187	Defecation method bowel care procedure used past four week main type	Type of main defecation method and bowel care procedures used within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22820	C22820	Injury level cold other text	Free-text field to indicate what other type of response the participant experiences from cold at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C21646	C21646	Orthosis crutches type	Type of crutches the participant/subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19423	C19423	Brain Motor Control Assessment (BMCA) - Similarity index value	Value of similarity index recorded for the designated test as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22325	C22325	Laboratory procedure gonadal function sex hormone binding globulin serum value	The value related to concentration of sex hormone binding globulin in the serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06107	C06107	Tobacco pipe bowl smoke daily average value	If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C06003	C06003	Injury associate spinal cord injury indicator	Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19115	C19115	Upper extremity surgery right osteotomy ulnar performed indicator	The indicator for the surgical procedure of the restoration of the right ulnar in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C13485	C13485	Household member total count	The total number of members in the participant's household	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C18174	C18174	Pre-exist diagnosis location text	Text describing the diagnosis and location of the pre-existing neuro-musculoskeletal history of either the spin and spinal cord, degenerative spine disorders, or systemic neuro-degenerative disorders	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06291	C06291	Medication affecting cardiovascular function type exam day indicator	Indicator of whether the participant/subject used the specific type of medication affecting cardiovascular functions on the day of the examination	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06354	C06354	Skin thermoregulation pressure ulcer anatomic site	Location on the body of the pressure ulcer	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06198	C06198	Perianal problem type	Type of problem with the anus found in the perianal space	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22828	C22828	Pain past treatment passive stimulaiton therapy other text	Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06147	C06147	Bladder diverticulum indicator	Indicator of whether there is bladder diverticulum. This means diverticula of any size within the bladder or bladder neck were found	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C06142	C06142	Spinal cord injury general quality life scale	Numeric response of life quality satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22339	C22339	Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value	The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.