CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21662 Follow-up care type

Indicates the type of follow-up care the participant/ subject received

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C06116 Force expiratory volume measurement

Forced expiratory volume in one second (FEV1) value measured in liters using simple spirometry. FEV1 is the volume expired in the first second of the forced vital capacity (FVC) maneuver

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C21616 Bowel care initiation stool out past three month average indicator

The indicator related to average time duration in minutes from initiation of bowel care to first stool coming out within the last three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22277 Thyroid disease assessment date

Date when information was collected for prior thyroid disease

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C07085 Alcohol Use Disorders Identification Test (AUDIT) - Morning drink after frequency score

The frequency with which the subject found himself or herself in need of an alcoholic drink in the morning due to a heavy drinking session the night before, as part of the Alcohol Use Disorders Identification Test (AUDIT)

Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) Spinal Cord Injury Spinal Cord Injury
C06003 Injury associate spinal cord injury indicator

Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C06409 Skin thermoregulation pressure ulcer past year indicator

Indicator of the presence of a pressure ulcer during the last 12 months

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C53047 Oral laxative tablet capsule granulate type

Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C18123 Xray study urinary tract global result type

The result type related to the X-ray study of the urinary tract found functional and anatomical conditions

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C14644 Functional Disability Inventory (FDI) - child form chore scale

The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) Spinal Cord Injury Spinal Cord Injury
C22803 Pain manageable last week day count

Number of days the participant had manageable pain in the last week

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C58652 Fall record time AM PM category

Category of the part of the day in which the time of the subject/participant's fall occurred

Supplemental Falls Diary Spinal Cord Injury Spinal Cord Injury
C21627 Hospital transport board mattress pad indicator

Indicates whether the hospital transport board was modified with a double matress pad

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

Supplemental Electrical Perceptual Thresholds Spinal Cord Injury Spinal Cord Injury
C19098 Surgery scoliosis performed date

Date of surgical treatment of scoliosis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C21658 Electrodiagnostic exam date

The date of the electrodiagnostic exam testing

Supplemental Sympathetic Skin Responses Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06215 Abdominal bloating frequency

The frequency of abdominal bloating within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 251 - 275 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.